Hey, my name is Tammy, and I’m the proud Mumma of my beautiful little boy, Tate, who will soon be celebrating his 5th birthday!

When Tate was 2, he was diagnosed with autism, and although I embraced that journey with love and patience, deep down I always felt there was something more. Sadly, my instincts were right. After years of worry and searching for answers, we recently received the devastating diagnosis of Sanfilippo Syndrome Type A - a rare, genetic and terminal condition often called childhood Dementia

Children with Sanfilippo gradually lose all the skills they’ve learned — their ability to walk, eat, and eventually even move on their own. My little boy has never spoken a word, and now I know I will never get to hear his voice.

There is currently no treatment or cure available in the UK, but I have a meeting soon with the Cure Sanfilippo Foundation to explore any possible treatment options abroad. These potential trials or therapies could give him more time being mobile & eating food! More days filled with climbing, running, and me living on edge to see where he will escape to next! - but they will be extremely expensive.

If there’s any chance to help him, I have to take it. I’m just a desperate mum trying to give her child a fighting chance.

If, in the worst case, no treatment is possible, then the funds raised will go toward making as many special memories as we can while he’s still able - trips, experiences, and the ‘simple’ moments we can treasure and appreciate before the disease progresses and he becomes wheelchair-bound and dependent on machines.

I know times are hard for everyone, but if you are able to donate anything at all, it would mean the world to us. Every single pound will go directly toward giving Tate the best chance possible.

If you own a business, or could host a fundraiser, or event to help raise awareness and support, we would be so incredibly grateful.

Please share our story far and wide. Your kindness, love, and support mean more than words can ever say.

From the bottom of my heart,

Tammy & Tate xxx