Help give Maddie hope and beat the beast!

Up until November 2021, Maddie was a strong and very fit mother to her beautiful now 20-month-old daughter Maisie and a wife to her amazing husband Matt. She was one of the fittest people her age, living an active, outgoing and happy life. Over the last 16 months, Maddie has been losing function in her legs and arms. After countless medical appointments, tests, scans, procedures, different treatments, theories of a cause and differing medical opinions, Maddie received the devastating diagnosis of Motor Neurone Disease on the 1st of September 2022. Maddie and her family's lives have been turned upside down.

Since the diagnosis and Maddie's deteriorating function, her husband Matt has had limited ability to work due to having to care for her, as well as being a full-time Dad to their beautiful daughter Maisie. Maddie has also had to stop working in her job as an Occupational Therapist.

Maddie's weakness began in her foot, and she is now in a wheelchair full-time having lost all function in her legs. Her upper body is becoming weaker by the day. She is unable to freely interact with her daughter Maisie and Maddie has lost her independence and needs help with all daily tasks that we take for granted. They have also been forced to move out of their 2 story home and live with Matt's parents. MND truly is a beast and has had devastating consequences on Maddie's life.

Motor Neurone Disease (MND) is a neurological disease that affects nerves called motor neurones. Motor neurones carry messages from the brain to the muscles via the spinal cord - allowing people to move, eat, swallow, and breathe. Symptoms can include weakness in the limbs, difficulty eating, swallowing, speaking and breathing, eventually leading to paralysis.

Maddie and Matt were able to find a clinic in the USA that treats MND with new cutting-edge treatments with promising results unavailable anywhere else in the world. Due to Maddies deteriorating health it was going to be too much of a strain on her body to travel to the USA, however Maddie's specialised medical team have been able to consult with this clinic and come up with a treatment plan that can be delivered under their instructions here in Adelaide, where she can be with loved ones and her support network.

This treatment could help Maddie have a better quality of life or even reverse her symptoms. The treatment she will be undergoing is customized to her, and will focus on her individual case through the use of intravenous therapy and injections. It has proven results to put MND in remission and even reverse it! There are currently no similar treatment options available in Australia, we have to take a chance. The alternative is sitting around and waiting for a miracle. Because of strict regulations, mainstream medicine in Australia currently offers no answers, no treatment and no hope for Maddie's condition. This treatment is a shining light of hope in an otherwise unknown future.

The cost of treatment, medical consultations with USA doctors, testing (all sent to USA), supplements and medicines are an extremely high, ongoing expense.

If you’d like to help please donate to this beautiful family to give them hope and the best chance possible for a longer life together. Maddie is one of the most positive and motivated people I know, and she deserves every chance she can to fight this beast and keep on living.

Lots of love, Lachie Trumble

** I’m Maddie's brother. All funds raised will go directly to Maddie and her family as the full beneficiaries of this page. Thank you all so much for your support. If you have any further questions please feel free to reach out to me**