Help getting to Johns Hopkins
Donation protected
On July 25th we were told our sweet little girl had Potter's Sequence, which is where no kidneys or (sometimes a partial) bladder form. These conditions are not what causes the baby to pass away, what does cause it is the lack of amniotic fluid not giving their lungs a chance to develop and ultimately the baby passes from pulmonary hypo.
Miguel and I as parents are completely terrified for our baby girl, and want to help her as much as we possibly can. In Oklahoma they do not have the capabilities to help give amnioinfusions to help her. John Hopkins hospital has a scientific study available that she would be able to receive fusions and have the chance at life. She would be on dialysis due to the lack of kidneys, but would by the age 2 be a candidate for a kidney transplant. We desperately want to give her a chance to be on Earth.
We know 1,500 is a lot to ask for. The funds would be for a medical round trip flight to Baltimore, Maryland, and a hotel. I as her mother needs to be there by this Sunday August 26th to meet with the neonatal team, NICU team, Dr.Baschat and his team, as well as receive my first diagnostic amnioinfusion. We know it is short notice, and we are desperate to save her life. Any amount helps greatly. We have a very long road ahead of us, and this amount although is large, is the amount only for this short notice trip. Thank you, and God Bless.
8/29/18
I just returned from our first trip, and there will be 4 more trips including an eventual stay at 28 weeks in Baltimore. If everything goes well, she will be born there and have a huge chance. This is honestly a financial burden in the sense of travel expenses. We are paying for the medical bills & so on but in lieu of that, we also have lost wages. If anyone wishes to donate we would be so thankful but if you wish not to, it is completely okay. In the total amount to travel and stay there it would be 6500. Towards the end after 28 weeks I can stay at the Ronald McDonald House but another individual would have to stay with me that is 21+. Anything helps and we are once again so humbled by the outreach in the community. ❤️
Cameron, Miguel, & Quinton
Miguel and I as parents are completely terrified for our baby girl, and want to help her as much as we possibly can. In Oklahoma they do not have the capabilities to help give amnioinfusions to help her. John Hopkins hospital has a scientific study available that she would be able to receive fusions and have the chance at life. She would be on dialysis due to the lack of kidneys, but would by the age 2 be a candidate for a kidney transplant. We desperately want to give her a chance to be on Earth.
We know 1,500 is a lot to ask for. The funds would be for a medical round trip flight to Baltimore, Maryland, and a hotel. I as her mother needs to be there by this Sunday August 26th to meet with the neonatal team, NICU team, Dr.Baschat and his team, as well as receive my first diagnostic amnioinfusion. We know it is short notice, and we are desperate to save her life. Any amount helps greatly. We have a very long road ahead of us, and this amount although is large, is the amount only for this short notice trip. Thank you, and God Bless.
8/29/18
I just returned from our first trip, and there will be 4 more trips including an eventual stay at 28 weeks in Baltimore. If everything goes well, she will be born there and have a huge chance. This is honestly a financial burden in the sense of travel expenses. We are paying for the medical bills & so on but in lieu of that, we also have lost wages. If anyone wishes to donate we would be so thankful but if you wish not to, it is completely okay. In the total amount to travel and stay there it would be 6500. Towards the end after 28 weeks I can stay at the Ronald McDonald House but another individual would have to stay with me that is 21+. Anything helps and we are once again so humbled by the outreach in the community. ❤️
Cameron, Miguel, & Quinton
Organizer and beneficiary
Cameron Woodward
Organizer
Edmond, OK
Elisa Woodward
Beneficiary
