Help get Jasmine walking again
Donation protected
Thank you for taking the time to read this.
Our best friends daughter Jasmine was diagnosed with a rare aggressive brain tumour (Ependymoma) at the age of 3 years old in November 2021 and had to have emergency 12 hour surgery as the tumour was wrapped around the brain stem and pushing part of the brain to the side. Unfortunately the surgery couldn’t be completed in one go due to the amount of blood loss and Jasmine had to be put into a medically induced coma in ICU for 6 days to rebuild her strength. As a side effect from this surgery she suffered a brain injury and now has Posteria Fossa Syndrome.
Jasmine has since had an additional 7 brain surgery’s as well as multiple rounds of chemotherapy (25 weeks) and radiotherapy (33 sessions) and still has not been confirmed as cancer free due to shadows in scans that cannot be confirmed without giving it time and more scans. We are fortunate to have just celebrated Jasmines 5th birthday, a day we were not sure we would see.
Jasmine is experiencing extreme Posterior Fossa Syndrome symptoms. We have been told that nobody knows how it happens, how to prevent it or what the recovery will be. When first diagnosed Jasmine couldn't speak for 4 months, couldn’t swallow for 3 months and had to be fed through feeding tubes and also could not move for 4 months. Jasmine also has left side weakness and left side face palsy. As well as this the tumour and surgery was in a place in the brain where it has affected the nerves and Jasmine also suffers from extreme sickness multiple times a day.
Over a year later Jasmine still can't walk but has fortunately regained minimal movement. Jasmine still has swallowing difficulties and speech difficulties as well as left side palsy and weakness. She is still also tube fed.
Before surgery Jasmine was just like any other 3 year old full of energy and life. She loved playing with dolls, make up and dressing up as well as playing with her brother Charlie who is 14 months older. Unfortunately Jasmine is no longer the child she used to be and now needs constant care and is no longer able to walk, feed or dress herself. We have been advised she may never return to the little girl we once knew and we are grateful for every day that we have with Jasmine.
Our main aim for this fundraiser is to support Jasmine and her parents who had to stop working to be able to care for Jasmine and are still attending hospital appointments nearly every day between Leicester and Nottingham and would love to be able to help fund Jasmine with some private physiotherapy sessions to try and aid her recovery and get Jasmine walking again ❤️
The family also are now in a position where they will need to make some considerable changes to their home to allow wheelchair access as Jasmines parents are having to carry and lift Jasmine in and out of the house (due to steps outside of the property) as well as carrying her up and down the stairs.
Thank you for taking the time to read this, we have struggled with the idea of creating a go fund me as we know there are so many people that need help and support right now so thank you, thank you to every person who lands here, who takes time to read Jasmines story and even if you aren’t able to donate we appreciate you and any positive thoughts you can send Jasmines way are well received! For those of you who are able to donate we are eternally grateful ❤️ Anything you can do to support Jasmine getting walking again is so appreciated and every single donation big or small is amazing and really helping us on our journey to support Jasmine living her life in the best possible way.
#BrainCancer
#PosteriorFossaSyndrome
#RaisingAwareness
#Ependymoma
#GetJasmineWalking
#WarriorPrincess
#JasminesJourney
Follow Jasmines Journey on Instagram
https://instagram.com/jasmines_journey__
Our best friends daughter Jasmine was diagnosed with a rare aggressive brain tumour (Ependymoma) at the age of 3 years old in November 2021 and had to have emergency 12 hour surgery as the tumour was wrapped around the brain stem and pushing part of the brain to the side. Unfortunately the surgery couldn’t be completed in one go due to the amount of blood loss and Jasmine had to be put into a medically induced coma in ICU for 6 days to rebuild her strength. As a side effect from this surgery she suffered a brain injury and now has Posteria Fossa Syndrome.
Jasmine has since had an additional 7 brain surgery’s as well as multiple rounds of chemotherapy (25 weeks) and radiotherapy (33 sessions) and still has not been confirmed as cancer free due to shadows in scans that cannot be confirmed without giving it time and more scans. We are fortunate to have just celebrated Jasmines 5th birthday, a day we were not sure we would see.
Jasmine is experiencing extreme Posterior Fossa Syndrome symptoms. We have been told that nobody knows how it happens, how to prevent it or what the recovery will be. When first diagnosed Jasmine couldn't speak for 4 months, couldn’t swallow for 3 months and had to be fed through feeding tubes and also could not move for 4 months. Jasmine also has left side weakness and left side face palsy. As well as this the tumour and surgery was in a place in the brain where it has affected the nerves and Jasmine also suffers from extreme sickness multiple times a day.
Over a year later Jasmine still can't walk but has fortunately regained minimal movement. Jasmine still has swallowing difficulties and speech difficulties as well as left side palsy and weakness. She is still also tube fed.
Before surgery Jasmine was just like any other 3 year old full of energy and life. She loved playing with dolls, make up and dressing up as well as playing with her brother Charlie who is 14 months older. Unfortunately Jasmine is no longer the child she used to be and now needs constant care and is no longer able to walk, feed or dress herself. We have been advised she may never return to the little girl we once knew and we are grateful for every day that we have with Jasmine.
Our main aim for this fundraiser is to support Jasmine and her parents who had to stop working to be able to care for Jasmine and are still attending hospital appointments nearly every day between Leicester and Nottingham and would love to be able to help fund Jasmine with some private physiotherapy sessions to try and aid her recovery and get Jasmine walking again ❤️
The family also are now in a position where they will need to make some considerable changes to their home to allow wheelchair access as Jasmines parents are having to carry and lift Jasmine in and out of the house (due to steps outside of the property) as well as carrying her up and down the stairs.
Thank you for taking the time to read this, we have struggled with the idea of creating a go fund me as we know there are so many people that need help and support right now so thank you, thank you to every person who lands here, who takes time to read Jasmines story and even if you aren’t able to donate we appreciate you and any positive thoughts you can send Jasmines way are well received! For those of you who are able to donate we are eternally grateful ❤️ Anything you can do to support Jasmine getting walking again is so appreciated and every single donation big or small is amazing and really helping us on our journey to support Jasmine living her life in the best possible way.
#BrainCancer
#PosteriorFossaSyndrome
#RaisingAwareness
#Ependymoma
#GetJasmineWalking
#WarriorPrincess
#JasminesJourney
Follow Jasmines Journey on Instagram
https://instagram.com/jasmines_journey__
Organizer and beneficiary
Jenn ❤️
Organizer
England
Jasmine Harnett
Beneficiary