One year ago, our life was forever changed. Our 16 year old son, Jase, was diagnosed with a brain tumor. Craniophyrangioma is a rare tumor that has many complex side effects. Jase will need to be evaluated and monitored for the rest of his life, as his type of tumor is known to come back.

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We had 4 years of monitoring, after so many surgeries that I have lost count, with no signs that the tumor was growing back. Then last February the Doctor thought he saw a change, or maybe it was just a shadow from movement, so they scheduled him for another MRI in June. In July we got the call that every parent dreads - the tumor has grown back.

After lots of debating, getting second opinions, and some delays, we decided to go with Proton Therapy, a special kind of radiation that very few places have the machines to do.

Unfortunately this means that the closest place that can do it is just under 4 hrs away. I had to give up my job to be able to be with Jase. Driving 8 hours a day for 5 days a week didn't seem plausible, especially during the winter. Thankfully the American Cancer Society was able to get us a discounted room at Extended Stay America. That still leaves more than half of the cost of the hotel, plus gas, food, and all the other expenses.

 We have payal and Venmo, if anybody prefers to send money that way. Use family and friends for no fees.