Help Get BOSSBABY TOMMY to America for treatment

Hi my name is Megan O'callaghan,Parent of Tommy Ocallaghan a beautiful 4 year old boy from drogheda living with the RAREST SEX CHROMOSOME DISORDER IN THE WORLD 49XXXXY ,this disorder occurs in 1 in every 100,000 live male births and only affects boys.

Tommy was diagnosed at 11 months old back in 2018 he had problem from birth at 36 weeks where he spent 27 days in nicu after many tests he was diagnosed with mild brain damage on the front lobes of his little brain ,following a Mri scan it was confirmed he also had a blanket of cysts was on his brain from that day we Knew our boy is special ,he suffers so bad in the winter months and has been hospilized on many occasions with double pneumonia, rsv, he's suffered a massive seizure in August 2019 which lead to him been put of life support In ICU TEMPLE STREET ,they saved our boy he was so sick. He also has a condition Hyptiona and hypermobilty along with bow knees which didn't make his mobility easy for him but he did it he walked, Tommy has faught a hard battle to get to where he is today ,when the diagnoses 49xxxxy was found threw geneitics nobody knew noting about it this was a big shock to us all ,so as a family we reached out to look for someone who could help our boy and we found her Dr carole Samango-Sprouse from the Focus foundation in davidsonville annapolis maryland USA .

We were very lucky to have gotten the chance to travel to Dr sprouse and her team in July 2019 which change both ours and Tommy's life we attended a 3 day medical conference, we meet a huge team of specialists and also attended an Endocrinologist in the Siam hospital in Ballymoney where he received the life changing treatment TESTOSTERONE we were told when Tommy was diagnosed that he might never walk or talk and be mentally retarded something no parent needs to hear but I always knew he was a warrior since receiving his testosterone treatment in October 2019 he's a different boy he is walking ,running and communicating he is still non verbal but uses sign language to express himself and communicate it was life changing for him I do belive if he hadn't of received it he wouldn't be doing what he is today, due to covid we haven't had much appointments or therapy and he still managed to learn how to walk with no physical therapy from anyone only us .

So as a family I am reaching out for help to get our boss man Tommy back over the the USA to his team of doctors and specialist to review him for his 2nd set of treatment and to attend a 3 day medical conference just about 49xxxxy we will also attend Endocrinologist and a immunologist to try get Tommy strong enough to fight these respiratory infections he keeps getting ,Tommy's team of doctors along with us as a family, rely on these doctors and specialists from the USA as they are the only people from all over the world to specialise in X&Y CHROMOSOME VARIATIONS .

We were lucky enough to be asked back over to the 2022 annual medical 49xxxxy week conference in July this year by Dr carole Samango-Sprouse who is going to scholship part of our trip.

On our end we will have to cover the cost of Flights,Visa,Hotel , Endocrinologist and immunologist and testosterone treatment.

We would be so greatful of and donations that will help get our BOSSBABY TOMMY TO THE STATES FOR TREATMENT.

Anyone who know us as a family will no how much Tommy and this means to us ❤

I promised my boy I'd do all I can to make sure he has the best life I will continue to fight for what he deserves.

In advance to each and every person who donates thanks you from the bottom of my heart ❤

#49xxxxyWarrior

#America

#Treatment

#testosteronetreatment

#Lifechanging