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Help me treat my chronic illness

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Hi my name Alice I am raising funds to help treat my chronic illness.

These include money for holistic dental treatment, lyme disease testing and treatment with a functional doctor and other living costs such as therapy as I have complex PTSD.

I have recently had to leave my family home and am now in supported housing.

Since October 2019 I have been having mysterious symptoms that are unexplained by doctors. After 7 months of pain and fatigue I was diagnosed with fibromyalgia. However, I have symptoms of tremors and migrating pain that do not fit a fibromyalgia diagnosis. 

In October I came down with what I originally thought was the flu. I had the worst migraines I ever had became shakey all the time I had really bad chest and back pain, that felt like a heart attack. I then started having stabbing pains all over and digestive issues, and burning pain all over my body and in my back. I then started getting numbness and tingling all over my body in various different areas. I started to experience dizziness and nausea everyday, and having palpitations and fatigue to the point that I could not hold a conversation. I had brain and memory problems and slurred speech and moments where I couldn't remember how to speak.  I had tremors and internal vibrations all over my body, tinnitus and muscle aches, I could not walk up stairs without getting breathless and I could not go out without having an anxiety attack.

A lot of these symptoms I still have. I went to the doctors about my symptoms and every time they told me I was fine. All my blood tests came back fine. I was told it was probably anxiety.

I had to change my doctors surgery and push to be referred to a neurologist because it was getting hard for me to walk. I had to quit my job because I was dizzy all the time. I stopped drinking, smoking, eating dairy, and sugar and meat, and still I was ill. Even now I am eating the healthiest I ever have, and I try to get as much exercise as I can. I eat as much organic food as I can and avoid processed foods at all costs, yet I am still ill.

I couldn't sleep, and if I did I would wake up drenched in sweat with heart palpitations so severe I called an ambulance. I went to A&E several times but I was told I was fine and that I needed to wait for my neurologist appointment. I have seen 2 neurologists, (one over the phone and one in person) both could not find any cause for concern however I am having an MRI scan on my head and spine just to be sure.

I have been working closely with a therapist (but who unfortunately now I can no longer afford) so I know it is not my anxiety that are causing these issues. 

Because no doctors have been able to help me and have labelled me as health anxious, I have been doing my own research and looking into alternative treatments.

I had a root canal done at the time that my symptoms got really bad and I got that removed which has helped me feel better but not 100%. With chronic illness there is a strong link to dental problems. I currently have an infected tooth, and an amalgam filling that I need to get removed because they are toxic to your health. Mercury is one of the most toxic elements humans can come in touch with, and root canals can never 100% clear a tooth infection and when the tooth is sealed off that infection accumulates in your body. The documentary root canal states this and many dentists now refuse to use amalgam fillings or conduct root canals. 

I have symptoms that cannot be explained by a fibromyalgia diagnosis for example my pain migrates and I have a burning sensation all over my body and neuropathy - but these symptoms cannot be explained by my neurologist either. 

I recently found out I have been exposed to mould, there is a strong link between mould exposure and lyme disease so I am trying to raise money for a lyme disease test, mycotoxin test as well as other alternative treatments and my dental treatment.

The NHS only offer the test if you have a rash and say it is only reliable within 6 weeks of infection. Looking back I now know I had the classic lyme disease rash around the time I got ill. It looked like a bullseye on my leg, however I just thought this was a sweat rash from the gym. 

I have not been able to work since October because I have been so unwell so I do not have money for all of these treatments. I am also hoping to raise money to work with a functional doctor who is chronic lyme disease literate and chronic illness literate and for living costs whilst I get back on my feet. 

I have thought long and hard about doing a go fund me but the desperation of being chronically ill and not able to work really has given me no choice. 

I know not everyone is on board with alternative health therapies so there is no pressure to donate, conventional health does not offer much relief of treatment for chronic health conditions. 

However, it would be amazing if you could contribute to me getting my health back.

Organizer

Alice Briselden - Waters
Organizer
England

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