Lee, Arthur and Tara are devastated with the news that their beautiful, darling boy Hector has recently been diagnosed with Alpers syndrome. Alpers is a rare, genetic, metabolic disease that means he only has a few precious months to live. Until recently there were no signs that Hector had any sort of genetic condition, he appeared healthy and happy meaning that the diagnosis has been shocking and agonising for the family. Although the immediate focus for the family is to get Hector home from hospital, we all think it's really important to set up a memorial which will live on in little Hector's memory. Although his life will be short, we hope to create a legacy which will last a lifetime and allow other children and their families to enjoy happy times in Hector’s favourite place.
As such, our main goal is to raise money to complete the play park in Great Witchingham behind Hector’s home. We know all the children in the village will make precious memories there and it means Arthur will always have a place to play, remember and be proud of his little brother.
Now we have reached the total to fund the new play park, Tara, Lee and Arthur are keen for Hector’s legacy to go on and help other families who are experiencing living with such heartbreaking news. They would like to donate to the following charities-
Great Ormond Street Hospital who are one of the world's leading children's hospitals and who have done an outstanding job caring for Hector and his family.
The Lily Foundation who are the UK's leading mitochondrial disease charity and the largest charitable funder of mitochondrial research in Europe.
EACH (East Anglia‘s Children’s Hospice) who offer care and support for children and young people with life-threatening conditions and support their families
Norfolk and Norwich University Hospital who have done an incredible job in supporting and caring for Hector and his family.
Thank you to everyone who has donated.