Help fund a car suitable for Emily’s power chair

Deciding whether to do this page has not come easy and was not something I really wanted to do. I have tried to keep everything private but now we are really needing some help. 

Emily  was born at  30 weeks weighing only 1lb 9oz due to a placenta failure.
Growing up Emily has struggled to meet many milestones. She went through lots of different testing, She struggled to gain weight. Emily started walking at nearly 2years of age, even though she could walk she struggled to walk very far and had numerous falls every day which meant lot of injury’s and lots of hospital trips. Emily was and is under many different speacialists at Southampton general hospital but her main consultant was a neonatal neurologist. Her neurologist saw her regularly and wanted to continue doing tests to find out what was causing all of Emily’s mobility problems. She underwent a nerve conduction test which meant sending electric shocks through her body to see how the nerves react, when the results came back this was when they new something wasn’t right so the next tests were genetic testing this took 9 months in total. When these results came back I had a phone call to say yes Emily has a progressive neuromuscular condition and asked us to come and have a chat to discuss what the testing had found, the next step was testing mum and dad. Much to our surprise both of our testing showed clear. This being very unusual as normally it’s passed through a parent. We then got changed from a neurologist to a neuromuscular consultant. We have been told that Emily comes under the muscular dystrophy umbrella but a very rare type which is so rare they can not  tell us anymore all they keep telling us it’s a progressive neuromuscular condition.
Emily is under lots of other specialists too. She has scoliosis, respiratory issues, swallowing problems and is always in alot of discomfort. Emily’s lives every day in pain. The biggest thing with these conditions is fatigue. At the moment we do not have a car suitable for her power chair Emily needs to be in her power chair to maintain the best possible posturet to help with the pain and discomfort. One of these vehicles big enough for her chair comes at a large cost. To go through mobility the upfront payment is more than we have at this current time and we do not meet the criteria for a full grant. Emily needs this now we don’t have the time to try and save to self-fund. In just the last couple of weeks there has been a lot of changes regarding Emily’s respiratory problems and pain, we need to try and help her the most we can and make every day as enjoyable and pain free as possible. Emily has many different appointments which currently can only be attended in a manual wheelchair which cannot support her specific needs. Emily’s condition is continuing to progress at an ever increasing rate and her mobility is getting more and more challenging.
Emily is such a wonderfully kind and selfless young girl. With your help we cannot only support her medical needs but also give her freedom to get out and about, explore new places and gain a small amount of well deserved independence. 
Anything and everything would be so very much appreciated. 
Please donate only if you can and please share our story and raise awareness. 
Thank you so much x