Hope for Hannah
Donation protected
https://www.facebook.com/stacey.tyson.73
This is Hannah Rose Tracy. She was born on September12, 2020 at 31 weeks, weighing in at 2.5 lbs. Her diagnosis is Trisomy 21, more commonly known as Down Syndrome. This little blessing has already endured more in her 3 short months than most have in a lifetime. She has yet to come "home" to where her family lives in Mineola, NY. She has not met her 4 older siblings as they are not allowed to visit her during these unprecedented times. She has not left the High Risk NICU at Cohens Children's Hospital, her temporary home for now. Today, she had her first surgery of a few to come, for what is called Laryngomalacia, a Congenital Malformation of the larynx and trachea. She has been struggling to breath on her own for months now and keeping food down has been a challenge. Pending her progress, she will be moved to St. Mary's Children's Hospital in Queens for Rehab for an indefinite amount of time. When she is stronger, she will be transported back to Cohens Hospital to have open heart surgery to repair an AV Canal Defect. She has a very long road ahead of her to say the least.
Her mom, Stacey, has been back and forth to the hospital every single day, feeding her, loving her and being her advocate, communicating with the doctors for her treatment plan. She spends upwards of 6-8 hours in the evening, sometimes not coming home until the early morning hours. She then spends some time with her other children before they head off to school. It's sleep for a handful of hours, wakes up to work, spend what little time she has left with her family before she heads back to the hospital. The stress and strain she and her family are under is indescribable. When Hannah goes to the rehab, Stacey will have to move in with her, because in these times, there is no going back and forth for visits. She will have to work part time in order to be with Hannah. Her husband James has taken on the brunt of the home situation, and they have had to hire a 2nd person to help with the children who range in age from 18mts to 8yo, in addition to working a full time job. He juggles sports, cub scouts, doctor appointments and daily life with 4 kids. Things have become extremely tough and medical bills are piling up.
Stacey and James have always and continue to help in the community. They have forever had an open door policy, constantly being inclusive in all they do. There's always some sort of post saying "come one, come all" for Birthdays, Halloween, whatever it might be, the Tracy Family has always had a love for community. Stacey has spent countless hours driving around, dropping off cheer and happiness to children, especially when COVID hit, helping children in the community smile, using her PTA as a cover. But it was her and James who were the masterminds behind that. James is a Cub Scout leader who despite what's happening and how busy he is, always makes time for meetings and events because it means so much to the children. They are the first ones to step up to support their friends. We'd like to support them for medical assistance, and to make sure their children at home are getting all they need at this time. As a community, we can help them alleviate their present financial burden and what lies ahead. We want Hannah to come home and meet her siblings under the best circumstances possible.
This is Hannah Rose Tracy. She was born on September12, 2020 at 31 weeks, weighing in at 2.5 lbs. Her diagnosis is Trisomy 21, more commonly known as Down Syndrome. This little blessing has already endured more in her 3 short months than most have in a lifetime. She has yet to come "home" to where her family lives in Mineola, NY. She has not met her 4 older siblings as they are not allowed to visit her during these unprecedented times. She has not left the High Risk NICU at Cohens Children's Hospital, her temporary home for now. Today, she had her first surgery of a few to come, for what is called Laryngomalacia, a Congenital Malformation of the larynx and trachea. She has been struggling to breath on her own for months now and keeping food down has been a challenge. Pending her progress, she will be moved to St. Mary's Children's Hospital in Queens for Rehab for an indefinite amount of time. When she is stronger, she will be transported back to Cohens Hospital to have open heart surgery to repair an AV Canal Defect. She has a very long road ahead of her to say the least. Her mom, Stacey, has been back and forth to the hospital every single day, feeding her, loving her and being her advocate, communicating with the doctors for her treatment plan. She spends upwards of 6-8 hours in the evening, sometimes not coming home until the early morning hours. She then spends some time with her other children before they head off to school. It's sleep for a handful of hours, wakes up to work, spend what little time she has left with her family before she heads back to the hospital. The stress and strain she and her family are under is indescribable. When Hannah goes to the rehab, Stacey will have to move in with her, because in these times, there is no going back and forth for visits. She will have to work part time in order to be with Hannah. Her husband James has taken on the brunt of the home situation, and they have had to hire a 2nd person to help with the children who range in age from 18mts to 8yo, in addition to working a full time job. He juggles sports, cub scouts, doctor appointments and daily life with 4 kids. Things have become extremely tough and medical bills are piling up.
Stacey and James have always and continue to help in the community. They have forever had an open door policy, constantly being inclusive in all they do. There's always some sort of post saying "come one, come all" for Birthdays, Halloween, whatever it might be, the Tracy Family has always had a love for community. Stacey has spent countless hours driving around, dropping off cheer and happiness to children, especially when COVID hit, helping children in the community smile, using her PTA as a cover. But it was her and James who were the masterminds behind that. James is a Cub Scout leader who despite what's happening and how busy he is, always makes time for meetings and events because it means so much to the children. They are the first ones to step up to support their friends. We'd like to support them for medical assistance, and to make sure their children at home are getting all they need at this time. As a community, we can help them alleviate their present financial burden and what lies ahead. We want Hannah to come home and meet her siblings under the best circumstances possible.
Organizer and beneficiary
Regina Giordano
Organizer
Mineola, NY
Stacey Tyson-Tracy
Beneficiary