But Dominic is a fighter and has kept fighting. He has to have a CPAP machine to help his heart failure from getting worse while they figure out a treatment plan for his spots. He is taking several medications to keep him stable. They are currently investigating 2 possible drug options to reduce his spots but we are waiting on biopsy results which could still take some time. We know for sure in 3-4 months Dominic will have to have a brain surgery to deal with his brain malformation. But we have many hurdles before brain surgery can take place.
While we live in Edmonton and can save some money we are struggling with the daily and future costs of being at the hospital and having a child with special medical long term needs. We know there are extra items we will have to buy that we weren’t planning on buying to leave the hospital. His possible medications will make him immunodeficient and extremely photo sensitive. We appreciate any help we can get.
- Jo Baulch
- priya gill
- Evelyn Anne McGranahan
- Linda Poole
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