Because of a brain hemorrhage from being born prematurely at 23 weeks, Maxine has a long list of medical diagnosis. She has had seven brain surgeries and multiple other procedures. She struggles with seizures. They are not short. All of her seizures, but one, have been longer than an hour. Some have lasted a couple hours. And, two of her seizures have been over 6 hours long, that of which we did not believe she would survive, but she did. Her seizure medications are hard on her body. When she’s laughing and interacting with her siblings, we often have to interrupt that to give her seizure meds that knock her out within minutes. They are hard on her liver. And, they don’t control the seizures that she has.
Many outlandish recommendations to control her seizures have been made to us, like admitting her to the hospital, taking away her seizure meds to locate the part of her brain that’s seizing, then removing that part of the brain with another brain surgery. However, our new neurologist along with another one of her doctors has recommended that we start Maxine on CBD oil. The CBD oil has the potential to be life changing for Maxi. We are hopeful that it could help control her seizures and also help with her nausea, vertigo, sensory problems, muscle tightness and tremors, pain, and speech impairment.
Although her insurance will pay thousands for other medications, it does not cover the CBD oil, that costs $515/month. It was suggested to us to start a gofundme, and raise support to get her prescription. If it works for her, we will be able to wean her off of some of her heavy seizure medications and others. We’d love to have your prayers and support for our precious little fighter.
- Jamie McLeroy
- Barbara 1000111000000000
Organizer and beneficiary
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