I’ve started this go fund me page to support my dearest friend Megan and her family’s journey as her youngest daughter Alyvia battles NF1 as her brain tumours grow, and options become limited.
Alyvia is 12 years old but was born with NF1 (neurofibromatosis) which causes tumours to grow on her nerve endings. Out of all the NF1 symptoms Liv presents with brain tumours, autism, eating and sleeping issues, chronic tummy pain among other body pain, headaches, delay in development, blindness in her right eye and poor in her left and now seizures.
Alyvia is now on her second kind of targeted therapy chemo, but due to puberty her hormones can cause the tumours to either grow out of control or stabilize tumours. Treatment options are now very minimal. Alyvia has started to have seizures as her tumour is growing and increasing pressure.
Megan is an incredible mother, sister, daughter and friend, but is now in need of our communities support. With the expenses of travel to and from Vancouver and cost of medications as well as having to stay at home as a full time caregiver of Alyvia, the costs are piling high. Anyone who has ever met Megan will no doubt have been made to laugh, she is so full of life and laughter. She would never let on the burden she carries. Alyvia is a little firecracker, she has a hilarious sense of humour as well as the fact that she is a very talented artist, which is quite impressive considering she is nearly blind.
The donations from this page will go directly to Megan and her family to help pay for her bills, rent, travel expenses, medications and living expenses.
Your donation is greatly appreciated by Megan and her family. Any amount will help ease their financial stresses as they go thru this uncertain time. If you are unable to donate, please share the link with family and friends. Thank you so much for your help in Alyvia’s recovery. (Send positive thoughts and prayers)
- Debra Dillard
- genevieve + julian violette
- Dawn Mockler
Organizer and beneficiary
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