A little back story
My daughter Lillianna Elaine 13 has angelman syndrome. A rare genetic disorder. She can't talk, walks with a wide gate and has several siezures a day. Taking multiple medications to help her through the day. She loves to dance, swim, watch YouTube, play with push toys and dolls. She also love to visit her grandparents as much as possible as they help us out in so many ways. One of the characteristics of angelman syndrome is an overly happy demeanor so she smiles constantly and is a joy to be around. Lillianna has two siblings, Samarra 11, and Arcadius 6 who both love her very much but don't get to live the life of normal children. My wife and I have struggled everday with bills and medical expenses pretty much living week to week on a single income. We make ends meet and try our hardest to make our children's life normal but it's extremely hard.
My daughter Lillianna besides having angelman syndrome also had a stroke when she was born fractured her ankle around 6 years old and at the same time was told she has hip displacia. Although they said she was still growing and it might correct it self it has not. We held out hope until the last possible second. On one of her visits to see her doctor about her hip they also informed us she needs to have back surgery as well . This was an extremely rough moment for my wife and I.
On September 14, 2017 Lillianna had triple innominate osteotomy hip surgery. In the the months to follow she will eventually have back surgery.
I put down $5000 down because I don't know what to do or ask for. As we never ask for help. Any little bit would help us a long way for Lillianna and our family.
Thank you so much.
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