Help for Jonlukes medical equipment

As most of you may know Jonluke has had a rough life from starting with a blood infection that stopped his heart at a few days old to being left with severe brain damage from all of it. The doctors said we would never come home from the nicu and would not see his first birthday. Any one that knows Jonluke knows he loves to prove doctors wrong. He is now 5 and has had his fair share of hard times from Epilepsy and having to have a VNS placed, cerebral palsy, cortical vision impairment, a 9in long blood clot, stenosis of the trachea, and a slew of other problems including a 6 month hospital stay back in 2017 that sent us to Cincinnati to get help. After all of this that he has been threw he is still the happiest little boy we know. He is in school and is loving his class mates and learning so much! Our problems come to our home. Jonluke got a new wheelchair from insurance last year as he is bound to it. Unfortunately it is 84lbs and extremely hard to get up our stairs and into our home. A few months ago we decided it was about time we got a ramp put in and a few other things he needs like a new seating system for the house and what not. What brought this on is that we are expecting our second child in April and he is not getting any smaller (especially for my 4’10 frame). I only have a foot to go till he is as tall as me! Unfortunately we don’t have the funds just sitting around for all the stuff he needs as we are a 1 income based family with me being Jonlukes primary care giver and Kevin working. What we are shooting for right now is a ramp on our porch and a chair called a ppod. After that any proceeds will go to our van. We are going to start trying to fundraise for a ramp to be added onto my van. These are no easy feats as they are all extremely expensive (as is everything else is for the disabled). Everything helps. Even if you can’t donate just to share his story and get it out there is a huge blessing in it’s self. Thank you

Donations ()

  • Anonymous 
    • $100 
    • 1 mo
  • Danielle Martin 
    • $100 
    • 1 mo
  • Anonymous 
    • $750 
    • 1 mo
  • P LaBrott 
    • $50 
    • 1 mo
  • Anonymous 
    • $50 
    • 1 mo
See all

Organizer

Megan Harding 
Organizer
Independence, MO
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