It's been a month since my niece Hadley was born. she's been in the NICU in Children's Hospital of Philadelphia  since day one. We finally received some answers to as why she's been sick. She's been diagnosed with ,. .Costello syndrome a disorder that affects many parts of the body. This condition is characterized by delayed development and intellectual disability, loose folds of skin (which are especially noticeable on the hands and feet), unusually flexible joints, and distinctive facial features . It's a rare genetics illness. It's going to be a journey for little Hadley along with my brother & his fiance and family . Hadley will be in C H O P for an extensive period of time and when able to be transfered she will be moved to a hospital closer to home My future sister in law can't return to her job And has been staying in Philly . My brother commutes every week backto Philly then home to work and take care of their kids back home I just want to help them out .