Help for Lucy Rivers Hyde

Our dear friends Jonathan and Kirsten Hyde welcomed their 3rd baby into the world today with uncertainty, but also a whole lot of hope and love. Below is a copy of what they shared a couple of months ago on Facebook regarding baby girl and her situation. There is so much that the doctors will learn this week and in the weeks to come and so much uncertainty as to how long the hospital stay will be, how many surgeries are needed, etc. As their community, the one thing that we have control over is making sure that the Hydes are provided for financially. At this point, no one can really predict what amount of money will be needed to fully cover their needs but we wanted to make an easy way for people to give. So, please give whatever amount that you are able to give and know that it means the world to Jonathan and Kirsten. The scripture talks a lot about community and tells us to carry each other's burdens. Kirsten and Jonathan both have served faithfully and been true gifts of life to so many of us. Now is our time to return that love. Thank you for being a part of this community and for being willing to give.

If you have questions, want to know other ways to help, or want to give money in a different way, please feel free to reach out to Susan or Joli.

Here is the Facebook post: "Baby girl was diagnosed with a congenital heart defect, double inlet left value defect (a single ventricle heart), and has tested high risk for having mosaic Turner syndrome. After a lot of doctors appointments, trips to Vanderbilt and a good deal of research here is what we know in non medical terms.

Baby girl essentially doesn’t have a right ventricle. This side of the heart receives deoxygenated blood and sends it back to the lungs to get more oxygen. Both of her great arteries run into the left ventricle. This is a problem because the oxygenated blood would be diluted by the deoxygenated blood and she won’t get the oxygen she needs. To fix this issue, she will need 2 or 3 open heart procedures sometime between birth and 4 years of age. She will always be at risk for congestive heart failure and it is not unlikely that a heart transplant may be needed someday.

The heart defect coupled with her being high risk for mosaic Turner Syndrome complicates all of this as statistically girls with Turners do not have good outcomes with one of the potential procedure’s The Norwood procedure. We won’t know to what extent Turner Sydrome will play out until she arrives. We also have been told her heart defect is very rare so statistics on outcomes are hard to offer."