Help Finn Fight for His Future
Finneas was born in August of 2025 to loving parents Lukas and Adelyn Smith. He is a cherished little brother to Fiona (4) and Ledger (1.5), and he has already brought immense joy to his family in his short life.
A few days after birth, Finn began showing signs that he was severely unwell. Lukas and Adelyn brought him to the hospital, where they learned he was dangerously close to losing his life. He then spent 2 weeks in the NICU. The doctors were baffled by his symptoms despite countless tests. Several months later, after numerous visits to specialists, the pieces began coming together and Lukas and Adelyn decided to do genetic testing. Finn was then diagnosed with Nemaline Myopathy --a rare neuromuscular disorder caused by a spontaneous genetic mutation that occurred at conception for which there is no cure. Neither Lukas nor Adelyn is a carrier of this disorder, and, to date, only one other individual in the world has been documented with this same specific mutation. They were told that although physical therapy can help a little, it is possible Finn may never walk, talk, or eat by mouth, and may even come to require invasive breathing support. At 5 months old he is still unable to control his head, has severely limited mobility in his arms and legs, cannot swallow his own saliva requiring frequent suctioning and breathing support, has to work hard just to breathe on his own, and is fed exclusively via a g-tube as it is unsafe for him to eat by mouth.
Since his diagnosis, Finn has been seen by an extensive team of specialists—neurologists, pulmonologists, and feeding and physical therapists, to name a few— all of whom repeat the same mantra: “All you can do is wait and see how his condition develops.” Despite seeing multiple therapists on a weekly basis, Finn has not shown improvement and his family grows incredibly discouraged about the outlook for his future.
In early January, Finn was evaluated by a new specialist - a functional neurological chiropractor who has successfully helped many patients with complex genetic conditions through alternative therapies and modalities. This specialist is confident Finn has the potential to regain lost skills and make progress, but the treatment required is frequent, intensive, and ongoing. Unfortunately, this care is not covered by insurance and requires extended travel and temporary housing during treatment periods.
We are asking for your help to support this sweet young family during an unimaginably difficult season. Your generosity will go exclusively toward Finn’s medical treatments and housing needs while he receives care. Every contribution—no matter the size—helps give Finn a chance to grow stronger and move forward.
If you are unable to give financially, we ask that you please keep Finn, Lukas, Adelyn, Fiona, and Ledger in your prayers and consider sharing this page with others. Prayers for Finn’s grandparents, Lynn and Ed Tabb and Julie Smith and Dan Carlson are also appreciated as they work tirelessly to support their dear loved ones.
Thank you for standing with the Smith family and for helping Finn fight for his future.
