Help find a cure for VHL

Update 4/7/17 - Thanks for all the donations received, we have reached our target with your generosity. Any future donations can be made through

30/6/2017 - I am 28 years old.  17 years ago when I was 11 I was diagnosed with a rare genetic disease called VHL (Von Hippel-Lindau -
I have since had many health complications and surgeries as a result.  After my 9th brain surgery I had to learn to walk and talk again and feel it is high time to do something more to find a cure for this awful disease and help the many other VHL sufferers.  The search for a cure also links to helping to find a cure for cancer – I’m sure everyone knows someone who has been affected by cancer.  

Thanks for taking the time to read this; every donation is hugely appreciated and thank you on behalf of the VHL Alliance.

Kind regards


 See top
  • Dave & Helen Clarke 
    • £20 
    • 43 mos
  • Roger Bowen 
    • £100 
    • 43 mos
  • Gavin Boyt 
    • £20 
    • 43 mos
  • Anonymous 
    • £20 
    • 43 mos
  • Rosie Lyob 
    • £30 
    • 43 mos
See all


James Kingston 
Braceborough, East Midlands, United Kingdom
  • #1 fundraising platform

    More people start fundraisers on GoFundMe than on any other platform. Learn more

  • GoFundMe Guarantee

    In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more

  • Expert advice, 24/7

    Contact us with your questions and we’ll answer, day or night. Learn more