Help find a cure for VHL

Update 4/7/17 - Thanks for all the donations received, we have reached our target with your generosity. Any future donations can be made through https://donatenow.networkforgood.org/1411829?code=orange

30/6/2017 - I am 28 years old.  17 years ago when I was 11 I was diagnosed with a rare genetic disease called VHL (Von Hippel-Lindau - https://vhl.org/).
I have since had many health complications and surgeries as a result.  After my 9th brain surgery I had to learn to walk and talk again and feel it is high time to do something more to find a cure for this awful disease and help the many other VHL sufferers.  The search for a cure also links to helping to find a cure for cancer – I’m sure everyone knows someone who has been affected by cancer.  

Thanks for taking the time to read this; every donation is hugely appreciated and thank you on behalf of the VHL Alliance.

Kind regards
James