Help Fin and Lou in Their Time Of Need!

Hello friends and family,

I’ve been holding off doing this until Finley and I really needed the help and I’m not good at asking for help at all :-/. But to start off, I want to say a big thank you to everyone in our life that has been there for us. I truly don’t know if I would be okay if I didn’t have such amazing friends and family. You know, if I’m going to be completely honest, I try really hard to be strong for both Fin and Ben and I think I’m doing a pretty good job, but there are days where all of the emotions flood in. The hardest part I think is knowing how to handle or what to say to Fin. As a parent, I think we all try our best to react or parent the best way we know how. But when something happens that is so life-changing on every level, especially for a 6-year-old, I worry if I’m saying the right thing or doing the right thing. What I think is working for us is I’ve made it a point to just sit with him and let him talk and ask questions. I’ve found that being as honest as I can to a 6-year-old instead of hiding stuff has helped the both of us so much.

As most of you know, Fin’s dad was diagnosed with ALS. His first onset symptoms started back in 2021 and was given an estimated timeframe of 2-5 years left to live. He is now in his 4th year :(. Just recently, he has declined pretty rapidly. He has received his wheelchair and will soon be getting his feeding tube put in I believe August 27th and also will be receiving his breathing machine. We have recently been notified that he was denied 24/7 care which is so insane and makes 0 sense :( but this has resulted not only for me but friends and family trying to schedule time to be there all night long 7 days a week. He has fallen a few times in the middle of the night which was extremely scary for Ben and all of us. He had to call an ambulance to come to the house to help him get off the floor. When this happened, I knew it was time for some changes to be made and made it a point to implement any changes I could do immediately. I’ve rearranged my work schedule in order to be there a lot more.

We have had a lot of help from my family which I’m forever grateful and feel very fortunate that Finley and I have such an amazing support system. But this has taken a toll on everyone financially the last 4 years. I’m asking for your help due to finding out Finley does not have any survival benefits and there is no life insurance policy. To be honest, trying to navigate through all of this has been so overwhelming at times.

This is such an incredibly sad time for all of us. Grief is so weird but overall, Finley and I are doing okay and we just want to spend as much time as we can with Ben. In order to be able to do that, we need your help. If you have anything you can donate to Finley and I emergency fund or share this GoFundMe, we would be so incredibly thankful. This will help us financially through Ben's time left and the grieving process after.

Sending you a big hug and a big thank you,

-Lou and Fin❤️

*I will be giving updates on Ben as time goes on.