Hi, my name is Melissa. I am Everleighs mom. We are creating this in hopes that you all will help us raise enough funds to travel to get Evy further help as our children's hospital has run out of options and are at a stand point when it comes to her care and treatment. Everleigh and her twin brother were born at just 33 weeks gestation and stayed in the NICU for 50 days. After a month and a half of being home, I noticed Evy making weird movement. After nearly 2 months in the hospital Evy was diagnosed with west syndrome ( infantile spasms) and severe epilepsy. Everleigh had a gastronomy tube placed as she lost the ability to swallow with out aspiration ( her feeds were entering her Lungs). Everleigh has spent 12 of the 17 month here in and out of the hospital. Undergoing numerous procedures, tests and still we have no answers. Her doctors have said that she has what's called refractory epilepsy meaning her epilepsy is medicine resistant. We are looking to travel to chop in Pennsylvania but this will not be covered by insurance. We will need to relocate for the time being causing her father and I to lose work. Please find it in your heart to help us get help for our little girl.