Help Eva Beat Rare Brain Cancer ATRT Brain Tumour

Hi! My name is Mouya Smith and I'm fundraising for 7 years old Eva Otudeko as she is bravely battling brain cancer.

Eva is a bright ray of sunshine. She loves singing, arts and crafts and design, her family and friends, and is particularly close to her older brother Ezra. It’s often said she’s wise beyond her years. At the tender age of six (6) years old, she has been faced with a life-threatening diagnosis: a fast-growing cancerous brain tumour, Atypical Teratoid Rhabdoid Tumour (ATRT). This is a stage 4 cancer with a 32.2% survival rate. After undergoing life saving emergency surgery, complications left her unable to walk with the partial paralysis of her right limbs.

After several visits to the GP, with no clear diagnosis her mother was told to wait for the paediatrician referral appointment, it was during this time her symptoms worsened, and she was rushed to the A&E where a CT scan was performed and a tumour was discovered. Upon receiving this devastating news, Eva was immediately transferred to St George’s Hospital London where she had brain surgery a couple days later. 



In September 2021 Eva underwent an 11-hour brain surgery which removed majority of the tumour. The residual tumour could not be removed due to the location-her brainstem. It is too dangerous to attempt resection. Her doctors have informed her family that due to her age and the size of the tumour, there could potentially be many complications resulting in permanent deficits.


After the surgery, she went to the intensive care unit where it was noticed that only the left side of her body was moving as she came around, and Hemiparesis-a weakness on one side of the body was apparent. In her post-surgery MRI, Eva was also found to have a blood clot on her brain as a result of the surgery and would need blood-thinning medications to treat this. Eva also experienced her first seizures as she recovered, and spent a month at the hospital, miraculously she slowly gained some movement back on the right side of her body.


After she had sessions with the physiotherapist, occupational therapist, dietitian, speech and language therapist, she was unable to walk due to the severity of the weakness and left the hospital in a wheelchair weeks later. As a consequence, her home was no longer accessible as there were several flights of stairs to access it, and the family moved in with relatives.


Eva began to make improvements, and she started to learn how to walk again. Today, Eva is determined to continue retraining her brain. Against the odds, there is a chance she will be able to regain full feeling and mobility through extensive physio work. However, Just after her 7th birthday Eva began experiencing some headaches and frequent dizziness and her MRI scan showed that she now had hydrocephalus and the tumour had shown some growth causing the new condition and symptoms. Eva underwent a second brain surgery to manage the hydrocephalus.


Why we made the Go Fund Me:

While intensive treatment will be provided by our amazing NHS. I've set up this page help support Eva and her family at her time of need. Eva can use this assistance to access specialist addition to care, pay for private options if the current care plan doesn't give her a cancer free future we are praying for,  to make memories with friends and family and decrease the financial worries through this difficult time, We hope to help fund her intensive neurorehabilitation after treatment to regain her independence and be able to walk again independently and even run like she once did. 

The treatment she has started is nine (9) rounds of intensive chemotherapy as well as daily radiotherapy over the coming months, after further surgery has been ruled out. As things have progressed with Eva's care, a need has arisen, and I am creating this page to help ease the financial burden the family will face moving forward as Florence, her mother, and sole caregiver, has been out of work to take care of Eva.

Currently she's undergoing treatment at the Royal Marsden Hospital prior she was having physio in the community which is 45 minutes fortnightly, whereas she requires further input to help her regain the use and control of her right limbs. She is making so many amazing improvements, and the best place to continue her miraculous recovery is a specialist paediatric neurorehabilitation facility after treatment which she is having currently.


Thank you for your thoughtful consideration to contribute to this GoFundMe for Eva. No amount is too small. Any amount will directly help to offset costs associated with Eva's care needs as she continues to fight for her life.

The unwavering support and compassion from her care team as they facilitate her treatment coupled with the prayers, support, and love from Eva's incredible army of well-wishers and praying community is the best combination the family could ever pray for.


Please Share Eva’s Story, it’s very much appreciated

#Evadivathebrave
 
 
Mouya Smith - Family Friend
Beneficiary - Florence Mother of Eva Otudeko


Thank you

 A few photos of Eva prior to her medical emergency
 
 
 
 
 
 
 
 
 
  • Carol Mcgrowder 
    • £10 
    • 4 d
  • Josephine Boyo 
    • £350 
    • 4 d
  • Anonymous 
    • £45 
    • 6 d
  • Anonymous 
    • £100 
    • 10 d
  • Atif Shabbir -Din 
    • £10 
    • 12 d
See all

Organizer and beneficiary

Mouya Smith 
Organizer
Wallington, Greater London, United Kingdom
Florence Otudeko 
Beneficiary