Help Ethan and family make memories

Just an update for you all..

Let's start with something positive..

Ethan and I are now MARRIED!!! (We got married in October 2022) ❤️ 

The last fundraiser money helped to support us take our little boy on days out, keep our head above water and get equipment for Ethan.

Not so positive..

Ethan has increasingly lost his mobility in his legs and now gets about in his wheel chair or mobility scooter. 

Ethan very rarely gets out and when he does he is in severe pain so it isn't very enjoyable for him!!

We made the TOUGHEST decision of ours lives as parents to tell our little boy that his daddy is dying, his not silly he can see how much pain daddy is in daily and trys to help his dad with everything he does. 

Ethan has regular home visits from hospice, GP, nurses etc and we have had MANY conversations regarding Ethans wishes etc, something I never thought we would be doing.

Ethan has been told he may not make it to christmas this year, we can only hope and pray that Ethan continues to keep fighting and prove the Dr's wrong.

We are asking again for any support to help us as a family make some memories- game purchases, arts and crafts, simple days out that we can do together. I appreciate times are tough for everyone, every £1 helps .

As a parent and a wife, I don't have any words for how I am feeling, just wish this would all go away and I get my family to stay together forever. ❤️

For those that don't know Ethan here's a little back story...

"When I was around 10 years old I suffered with bad leg cramps, when going to the Dr's and hospital etc they put it down to growing pains and I had 5 years of physio.

The pain got so bad that they sent me for an mri scan, this is where they found a mass on my lower spine.

I was diagnosed with a meningioma (brain tumour) on my spine which is quite rare, I was sent for surgery at addenbrooks hospital where I was operated on for 8 hours. Once the op was done I had 6 months of relearning to walk again. The consultant said the tumour could possibly grow back within 5-10 years.

I had regular scans and within a year the tumour had grown back again. I then had intense radiotherapy, every day for 6 weeks.

The tumour was at a standstill, the radiotherapy hadn't done much but it was now dormant. I was only young and to take all this on played with my mental health ALOT, I was sectioned in 2014. 

I met my partner and then had my miracle baby boy in October 2018 

In August 2019 the tumour had grown again and again I needed 6 weeks of intense radiotherapy (this time at addenbrooks). 

The radiotherapy didn't do much, just stumped the tumour.

Whilst all these events were going on I was still in severe pain with my back, legs and mental health. 

I have to use a walking aid to get around and a mobility scooter on my bad days. 

In 2020 the tumour became active again, growing very slowly.

In 2021 because of severe pain addenbrooks had offered me another operation, when I had a pre op with the surgeon, he advised me that if I was to go ahead with the operation that it would be a high chance that I would loose my bowel, bladder and all sexual functions and high chance i would end up permanently in a wheelchair (being a 24 year old at the time, to have a bag and not be able to walk etc was the last thing I wanted!!) The surgeon made a decision to manage my pain and not operate until he felt he needed too. 

In May 2022 I bent over slightly to place a dog bed onto the floor and I felt and heard a pop, I was in so much pain and couldn't move, after a visit to a&e I had yet another scan it was shown that my tumour had grown again. 

I was sent up to addenbrooks to talk with my surgeon which is where he told me that my tumour had grown rapidly in the last year, it's grown up my spine, down my spine and into my bone and there is nothing more they can do for me now. My emotions were all over the place as expected, all I could think of was my little boy. 

I was then referred to St Elizabeth's Hospice where I will be getting palative care, when I was there I asked them what the road map of my life looks like in which they said we are looking at 1-2years, 2 years being good, it won't be the cancer that 'kills' me as such but what the tumour effects ie-organs etc. I was asked questions that I still can not answer (do i want to die at home, funeral plans etc) I am broken, but strong and positive for my little boy. I hope I can prove the Dr's wrong and have a few more years left in me but I really do need you guys help to help and support me to make memories for my little one. 

Big love to everyone. ❤️"