UPDATE: 2/13/26

greetings earthlings. I am coming to you live from my cell phone, since we have yet to deduce the cause of my hand and arm pain that prevents me from typing on a standard computer. I will be using voice to text per usual.

it has once again been a few months since my last update. I want to first address the situation where an individual accused me of faking my MS diagnosis and "not really needing" a GoFundMe. I have extensive documentation for this diagnosis, so I don't think that any reasonable person believes this, but I am always happy to provide this documentation if it is necessary.

however, it is people like this and situations like this that lead me to wait months in between updates. I question if I am really deserving of this help when other people need it more. I question if anyone is going to believe me. I dread the feeling of pleading for help and not receiving anything at all.

but it is the new year and we have lost insurance. we have been able to successfully

multiple financial aid programs for medication, which will get us some of my medication for free, and others at a discount. this is extremely valuable. however, this is just the medication. appointments must be paid for out of pocket

we started physical therapy, occupational therapy, and speech therapy specifically for MS. even excluding physical therapy, the 4 weeks of treatment they want me to embark upon will cost $1,200. My pelvic floor therapy is still $190 per session. My upcoming MRI is billed at $4,000.

This is just the costs we anticipate. if I go through another stint like this past December where I am in and out of the ER, eventually being hospitalized, that is something we simply cannot afford.

I was optimistic about being able to get a job now that I am approved to start driving again. they believe that my vision difficulties stem from the damage to my brain, and they do not have a cure or even a method of treatment, but they say I am well within the range to continue driving if I feel comfortable doing so.

sadly, things quickly fell apart on only my second attempt at driving. my steering acceleration and brakes all failed while I was on the interstate. thankfully I was okay, but the car will need to be fixed if I'm going to attempt to make my own money again, and we have no idea what that is going to cost.

suffice to say, I must put my own apprehensions aside and ask for help once more. I dread the idea that this might direct more scorn my way, or that it might not gather any attention at all, but I have to try. My situation isn't getting any easier and I have to try any avenue I can if I hope to get better.

The good news is I have started going to a fitness class for people with neurological difficulties, and I'm optimistic about it. I was able to get approved for the charity program for my new disease modifying therapy, so as long as I tolerate it, it will be free of charge.

I am endlessly grateful for the generosity of strangers as well as friends and family. you are the only reason we have gotten as far as we have. you are the only reason I have been able to purchase disability aids and get the diagnoses that I need. I truly cannot thank you enough. while I am still mourning the life I had and the feeling of being normal, I am extremely grateful for the things that I do have.

thank you for reading and I'm sorry for being semi-formal this time around. The stress of everything in my life is starting to take a serious mental toll and I have to put some walls up to stay functioning.

as always, stay safe and remember that I love you. hopefully talk more soon

- eris

OLD DESCRIPTION:

Hi, my name is Eris. I have been disabled since childhood. But in the year 2020, things took a turn for the worse. In the past 5 years I have been diagnosed with endometriosis, PCOS, ehlers danlos syndrome, and POTS - but there are countless other symptoms that have yet to even be treated.

In 2024, I lost the ability to maintain a job due to constant vomiting, fatigue, loss of fine motor control, declining cognitive function, and inability to stand or walk for long periods. I have to spend most of my waking hours horizontal in bed, or I risk passing out and/or dislocating my joints.

My family has made every attempt to take care of me, but with cuts to government funding in 2025, we are now drowning in debt and struggling to get income. We need funds to pay off medical debt, travel to see specialists for my conditions, purchase mobility aids, pay for monthly prescriptions, and of course cover our basic needs.

If you've made it this far, thank you for reading. I would appreciate any amount you can donate, no matter how small. Even a share helps. Thank you and have a blessed day