Help Ellis Fight Hunter Syndrome

My dear friends, Stephanie and Allen Tripp, are enduring so much heartbreak with the diagnosis of Hunter Syndrome with their newborn, Ellis. If you don’t know much about Hunter Syndrome, it is an extremely rare disease that only effects 1 in 170,000 boys. There is currently no cure for this terrible disease, and it will progressively get worse. It will effect his joints, enlarge his organs, complicate his breathing, cause heart disease, and he will have declining brain function. Life expectancy for Hunter Syndrome is not good either. Because this disease is so rare, there are only a few forms of treatments available to even help him. Unfortunately, insurance will not cover all of the costs of a port placement and enzyme infusions, and a possible bone marrow transplant. Times are stressful for this sweet family, and without early intervention of his disease, we cannot protect his little body from getting worse and prolong his life. Anything will help, all prayers and donations are greatly appreciated.