As you probably know, Elisa is an incredibly creative, smart, and strong 13 year old girl. She loves performing arts and spending time with friends, and is a top student, participating in Model UN, Student Council, and GSA.

Unfortunately, this past fall, she was diagnosed with severe scoliosis, a condition that's causing her spine to curve significantly. Right now, she experiences frequent pain that limits her ability to enjoy the things she loves, and if the curve progresses further, there is a risk of impact to surrounding organs such as her heart and lungs.

After consulting with several top spine specialists, Elisa's doctors have recommended Vertebral Body Tethering (VBT) as the best surgical option for her. Unlike traditional spinal fusion, which permanently restricts movement and carries multiple long-term risks, VBT is less invasive, allows her spine to keep growing naturally, preserves her range of motion, and reduces the chance of future spinal disc degeneration, muscle atrophy, and early onset spinal arthritis.

Although VBT is FDA-approved and highly recommended by Elisa’s medical team, the insurance company still classifies it as "investigational" and has denied coverage. Thankfully, Elisa will undergo the procedure at Shriners Hospital in Philadelphia, a leading center specializing in VBT, which will provide financial assistance for the cost of the surgery itself.

However, because insurance will not cover the surgery, they're also refusing to cover the additional medical expenses that would typically be included. These, plus additional expenses, include:

I know many of us want to support Elisa and Camellia during this tough time. If you're unable to donate, sharing her story and sending them a note of support would mean just as much.

Thank you so much for your kindness and generosity - I know they will be eternally grateful!