
Help Eli and Jess Through This Tough Time
Donation protected
I'm helping raise money for my sister Jess due to my nephew, Eli needing surgery this coming week.
Eli was diagnosed about a year and a half ago with a very large tumor that they found because he wasn't able to breathe through his nose. It ended up being Juvenile Nasopharyngeal Angiofibroma (JNA), which is a rare, fast growing tumor that spreads in the nasal/sinus areas. His first tumor was very large and was putting pressure on his brain. The neuro and ENT surgeons had to come up with a complex plan and remove and then put back a portion of his skull while also going in nasally to remove the whole thing. It was a long recovery and Eli was such a champ and Jess the very best mother anyone could hope for.
Throughout this last year, they've kept a close eye on him with scans and unfortunately, the tumor came back. Not as big and complex this time, but still requiring surgery to remove.
Jess has had to take a lot of time off of work this past year to drive Eli to his multiple doctors. She is a single mother doing an incredible job. She has gone through all of her paid time off and is now looking at taking this week and whatever else off for this next surgery.
Jess and Eli are two of the most joyful, fun, adventurous, caring people I know. I want to help Jess get through this next couple of weeks without having to worry about bills with missing so much work.
If you're able, we would be very grateful. If not, we are just happy that more people are aware of JNA and its impact on children and their families.
If you'd like to learn more about it, here is a website Jess highly recommends Jnahope.org
Thank you for reading, from our family to yours.
Organizer and beneficiary
Danielle Alene
Organizer
Fort Hamer, FL
Jessica Diefenderfer
Beneficiary