Help Ease the Burden of MS Treatment

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78 donors
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$7,145 raised of $8K

Help Ease the Burden of MS Treatment

In February of 23, my life would change drastically. I was experiencing some dis comfort in my left eye, figured I was just getting an eye infection, until it started to hurt to physically move it, I knew then something was not right. Made an appt to see an eye doctor, kinda scared of what it might be, never would have imagined that appointment would lead me to the ER at Wills Eye in Philadelphia. After what seemed like an eternity, they finally took me for an MRI, I was not prepared for what was to eventually come. I had or have optic neuritis in my left eye, which is often associated with multiple sclerosis……..WTH was I hearing??? How could this be? In the months that would follow, it was not just my eye, my legs started to go, I have partial feeling from the waste down, making it extremely hard to walk like a normal person. I was officially diagnosed in September of 23 and was told that I should start infusion treatment with a drug called Ocrevus. Getting back what has already happened is not an option, but this drug basically puts MS in remission if you will, stops it from further attacking me. The infusions are twice a year but this is where I need some help. The medicine itself is 70K….yes 70K. That doesn’t include all the staff charges, pre meds they give, blood work, MRI’s and doctors appt. The insurance covers a lot of it but not all, last year my out of pocket was close to 4k and I still owe almost 2K. I have been working since I was 16 years old, and I work all the time now and try to put in as many hours as I can, but it does take a toll on me physically, every day when I get done work I am basically bed ridden with a heating blanket to try and numb the pain, which is no way to live, be a Mom or a wife. So I am asking for help to try and relieve some of the financial issues and so I don’t have to try and work so much extra, to give my body a break, if only for a moment. The daily struggle and pain is not something I would wish for anyone, or the depression, feeling like a failure, because I went from being my Son’s everything to being a physically and emotional mess.

Organizer

Amy Loesche Reynolds
Organizer
Medford, NJ
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