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Help DMD Patiënt Görkem Efe Şengün

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Ben DMD hastası Görkem Efe. 11.09.2008 tarihinde dünyaya geldim. Babam emekli polis memuru, annem hemşire. İlacım yurtdışında bulunan ELEVIDYS isimli gen tedavisidir. Maliyeti (2.901.907$) çok yüksek olan bu ilaca sizlerin destekleriyle ulaşabilirim. Bu zorlu mücadelemde ellerimden tutarsanız kazanacağım

I am Görkem Efe, a DMD patient. I was born on September 11, 2008. My father is a retired police officer, my mother is a nurse. My medicine is a gene therapy called ELEVIDYS, which is available abroad. I can reach this medicine, which is very expensive ($2,901,907), with your support. If you hold my hands in this difficult struggle, I will win

Ich bin Görkem Efe, ein DMD-Patient. Ich bin am 11.09.2008 geboren. Mein Vater ist ein pensionierter Polizist und meine Mutter ist Krankenschwester. Mein Medikament ist eine Gentherapie namens ELEVIDYS, die im Ausland erhältlich ist. Mit Ihrer Unterstützung kann ich auf dieses sehr teure Medikament (2.901.907 $) zugreifen. Wenn Sie mir in diesem schwierigen Kampf die Hand halten, werde ich gewinnen.
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    SMA Children Stichting
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    The Hague

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