Help DMD hastası Yusuf Alper Demir

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€1,701 raised of €2.9M

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Help DMD hastası Yusuf Alper Demir

Help DMD hastası Yusuf Alper Demir

0% complete

€1,701 raised of €2.9M

60 donations
Donation protected
Merhabalar ben Yusuf Alper Demir, ailemin tek çocuğuyum. 2017 yılında Eskişehir’de doğdum, şimdi 8 yaşındayım. 1 yaşında kan değerlerimin yüksek olması sebebiyle hastanede bana DMD kas hastalığı teşhisi kondu. Hastalığın etkisini 6 yaşına kadar hissetmemiştim ama artık hissetmeye başladım. Ben de tüm arkadaslarim gibi koşmak zıplamak istiyorum. Bu sebeple hastalığımin ilacı olan Elevidys ilacını almak istiyorum ama bu ilaç çok pahalı. Ailem bunu tek başına karsilayacak güce sahip değil. Sizden başka çarem yok n'olur yardım edin.

Hello, I am Yusuf Alper Demir, I am the only child of my family. I was born in Eskişehir in 2017, now I am 8 years old. When I was 1 year old, I was diagnosed with DMD muscle disease in the hospital because my blood values ​​were high. I did not feel the effects of the disease until I was 6 years old, but now I am starting to feel it. I want to run and jump like all my friends. For this reason, I want to buy Elevidys, the medicine for my disease, but this medicine is very expensive. My family cannot afford it alone. I have no other choice but you, please help.
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SMA Children Stichting
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The Hague
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