
help for dillon and lynnon
Hi, I really need help getting a vehicle. My name is Dillon Mccellon and my daughter's name is Lynnon Haze. We live here in Spring, TX. She has an ultra-rare genetic condition called CRELD1. She is one of 21 people with it. It causes intractable seizures, heart arrhythmias and cardiac arrest, neurological delays, and low muscle tone. Over the past 2 years, she has been admitted to the hospital 72 times. Lynnon and I have spent 18 months at the hospital during her two years of life with almost weekly admissions.
I currently live with my mom and I am relying on her for transport to and from the hospital, but she just started a new job that requires lots of traveling. Transportation would be huge for me and Lynnon. I am trying to find my own vehicle. I cannot work because of how often I live at the hospital with her and because I take care of Lynnon by myself (she requires around the clock care). any money donated would be incredibly helpful it will also buy specialty equipment for her and anything else that she needs for daily life .Any help would be appreciated. Thank you! ~Dillon