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Help Davin's Family with Medical and Travel Costs

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I am creating this GoFundMe in hopes of helping Davin's family during this time. Davin Mann is 13 years old and he was born with cardiomyopathy. Cardiomyopathy is a heart muscle disease.


Davin was rushed to Golisano Children's Hospital on September 11th, 2024, due to Davin's "stomach bug." The cause was reduced heart function. Davin was in cardiac ICU for the next few days at least. He received a PICC line. His ejection fraction was at 20%.


Then on September 12th, 2024, Davin's ejection fraction lowered to 10% and his SVT rhythms. That's when Golisano Children's Hospital set up a medical transfer to a hospital in NYC. Davin was transported by ambulance to Rochester Regional Airport with his mom by his side, where they met up to take a private jet (formerly the Buffalo Bills Jet, which was donated to the hospital). On that flight were Davin, his mom Jamie, and the whole heart team, where they flew to NYC. When they landed, they were then transported again via ambulance to Hassenfeld Children's Hospital at NYU Langone. When they got to the hospital, Davin's ejection fraction lowered again to 8%. Davin is currently placed on the heart transplant list.


On Sept 13th, 2024, Davin's father Dustin traveled down to the hospital in NYC. He stayed behind to tend to their younger two children, Lydia and Vivian, and pack what they needed and make arrangements for the other two kids.

Jamie and Dustin live in Dansville, NY. From Dansville to the hospital where their son is at is a 6-hour drive one way.


Update: as of Sept 14th, 2024 (Jamie, Davin's mom)

Davin has continued to vomit even when not eating or drinking at all. They said at this stage his heart is not functioning well enough to pump the blood needed to allow the stomach to work properly, which is why he is vomiting. So they are planning to put a tube in through his nose down to his stomach to consistently pull the fluids out of his stomach to keep him from vomiting. His lungs are also beginning to struggle, and his oxygen levels keep dipping, so they put him on oxygen full-time with a CPAP at night. We had a meeting with his cardiologist today, and the plan going forward is to give him a Ventricular Assist Device (VAD), which will go inside his heart to help push blood flow. Once he has his VAD, they are hoping it will help get blood to his stomach and lungs and get those organs functioning properly again. VAD surgery is scheduled for 8 AM tomorrow morning. On Monday, they are starting the evaluations for the heart transplant with the goal to have him on the National Transplant List.


That is the most updated information that we have at this time.


We are hoping to raise money to help Jamie (his mom) and Dustin (his dad) with travel expenses and money to help with bills. They also have two other kids back home, staying with family while they are with their son during this time.


So please, if you can donate to help out or share this, it would be greatly appreciated!

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Donations 

  • Anonymous
    • $25
    • 8 d
  • Anonymous
    • $20
    • 11 d
  • Lynn Siciliano
    • $50
    • 14 d
  • Anne Marie Throumoulos
    • $50
    • 14 d
  • Anonymous
    • $20
    • 15 d
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Organizer and beneficiary

Barb Snyder
Organizer
Mount Morris, NY
Jamie Mann
Beneficiary

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