
Help David Sorando treat Hyperacusis and Lyme
After being sick with digestive issues, general malaise and mysterious cognitive symptoms for several years, a brief attempt in August 2018 at Neomycin/Xiflaxin therapy for gut issues left me with (at first mild) tinnitus and hyperacusis, TMJ/facial pain, worsening acid reflux pain, inability to sleep, worsening digestive function, and strange new panic/overstimulation/seizing/spasming symptoms.
Shortly afterward I was put on Ativan for sleep and panic, assured by my Psych it's use would be beneficial while we would find an adequate replacement and getting off wouldn't be an issue (and that during certain times it was ok to up the dose to maintain control of anxiety/symptoms). After a few months of symptoms being progressive, fruitless tests like MRIs and psych med trials that only exacerbated symptoms, I tested positive for Lymes on three seperate blood tests and so am now undergoing antibiotic therapy which has so far mostly just spiked symptoms further.
At this point I am trapped in my parents basement in the quiet due to severe debilitating hyperacusis (self estimated LDL in the 40s decibel wise) with 24/7 audible tinnitus, unable to drive or use my desktop computer, unable to work, struggling to maintain my already low weight (160 down from 193 in August), experiencing tolerance and interdose withdrawal on 1.25mg Ativan (especially after antibiotics for some reason), getting baby food delivered by instacart, and desperately hoping there is some sort of light and possibility of some degree of recovery at the end of the tunnel.
I just got state medical assistance, and I'm working towards food stamps/disability/SSI, but until then I can only ask for help from those willing to give it. The initial goal is the $200 for the hyperacusis appointment at the UMMC Tinnitus and Hyperacusis Center, to see the experts on my most debilitating symptom since they are not covered by my insurance (entirely, at least), and my parents will not take time off of work or pay for a visit there. Their support, that I am still very grateful for, is limited by their own financial situations, and they also refuse to even acknowledge the extent of this issue and it's debilitation, or support going to the hyperacusis center in Baltimore to be treated by the specialists. I spoke with them today and they work regularly with people described just like me, who can't function, can't leave their homes, can't work, break down and cry on the phone and in their office, etc.
Any funds that anyone is generous enough to donate will go to that appoint, possibly money for a ride if I can't find one, and possibly money for a decent sound generator to use for sound therapy and/or whatever else they recommend, but at this point I'm desperate enough to be willing to accept any help anyone can give me for food, medical care, things like the supplies I need to do a liquid taper for the benzos, even potentially being able to get sound generator hearing aids for therapy if they are necessary, which can be a couple grand and not covered by insurance.
Obviously, nothing from this GoFundMe will be used for recreational or other personal uses, just treatment and living expenses. And I do hope that if, or hopefully when, I recover I can pay back whatever has been given to me both by my parents and others. Thank you.