David Needs Brain Surgery

David is my wonderful husband. In 2004 aged 22 David was diagnosed with a rare (3 in 1 million), deep-seated brain tumor called a colloid cyst. This day changed our lives forever.    It started with acute headaches & sudden short term blindness, which was initially diagnosed as stress, then cluster headaches. Finally after going to see an optician for the headaches, they noticed he had misshapen optic discs and sent him as an emergency to hospital for a C.T scan. In December 2004,  David had surgery to remove the tumor.  The surgery went well & they told us they removed it all & David was allowed home. Christmas Day, David sneezed & blew Cerebral Spinal Fluid out of his head stitches, and was rushed back into hospital, where he had another surgery to install a VP Shunt to control the CSF fluid that wasnt drainaging from around his brain properly.  Everything seemed to go back to normal for a few years after and we thought we were done with that chapter of our lives. At one of David's routine MRI follow ups, we learnt that it had grown back! We found out that this was due to the surgeon leaving a small amount of the tumor behind. This was because it was attached to the main artery in his brain and thus too risky to remove. David was put on 6 month MRI check ups and we slowly watched it grow back. Its now more than double the size it was before the surgery. Whilst the tumor has now been there for some time,  it will continue expanding, putting pressure on his brain and effecting David's memory, balance and daily attitude. On bad days, David acts like a completely different person, to deal with this, we have named him Bernard. Bernard is short tempered and suffers with depression. This personality change is caused by the pressure the tumor places on parts of Davids brain.  David takes daily Morphine and Ondansetron to try help with the pain and nausea he feels daily, but that doesn't stop the numb face, tingling hands & face & brain fog. David hasn't been able to work since the start 2018 and as it is so rare, does not fall into the pre set categories for help with any financial or care benefits. The only option we are left with is a further fin surgery. Unfortunately the  multidisciplinary team at the QE Hospital has decided it is to much of a risk to them & to David to operate. Which also means other UK Hospitals won't give the go ahead either. This is where the GoFund me page and you guys come in. There is a Surgeon in New York called Mark M. Souweidane, M.D,  who has done this surgery over 100 times. We would like to arrange a meeting with him to see if he is willing to take on Davids case. As we are not American citizens and do not have insurance to cover this, we would need to pay for everything ourselves. The initial cost for an appointment £2000. This doesn't include flying to NY or staying a few days around the appointment date. If he is willing to take on the case, we will then incur additional appointment costs, then there is the pre op and the operation, which costs £125,000, and the after care stay. We will also need another set of flights and an Air BnB to in stay whilst David has the surgery and check ups after. We know this seems like a crazy amount of money to be asking for, but if you knew David and saw/felt  what he goes through daily, you would understand why we have gotten to this point. David just wants his life back & to be able to work again. I just want my happy husband back & our son just wants his dad back. We will of course  keep everyone updated with our progress. Please gift whatever you can afford. Thank you. x

Donations

  • Pamela Choto 
    • £10 
    • 8 mos
  • Anonymous 
    • £10 
    • 8 mos
  • Maimoona Peart 
    • £50 
    • 9 mos
  • Martin Horton 
    • £50 
    • 9 mos
  • Pam Smith 
    • £70 
    • 10 mos
See all

Organizer

Suzy McCrea 
Organizer
Birmingham, West Midlands, United Kingdom
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