Help Damon Fight Pulmonary Hypertension

Damon’s family faces PICU, transplant costs, and denied meds while bills mount

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$27,817 raised of 

Help Damon Fight Pulmonary Hypertension

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Calling All Earthly Angels — A Little Boy Needs You

We are reaching out with heavy hearts and hopeful spirits for a precious 4-year-old boy who urgently needs help. My niece, who is a daughter to me, Gina Christini, is living every parent’s worst nightmare. Her sweet little boy, Damon Jones, is fighting for his life. Damon is pure sunshine: funny, bright, full of personality, and able to warm any heart he meets. But today, Damon needs all of us.

Just over a week ago, he was diagnosed with severe pulmonary artery hypertension and right-sided heart failure, a rare and devastating condition affecting only a small percentage of children. He now requires long-term medical care, continuous treatment, and ultimately a heart/lung transplant. Damon is currently in the PICU on continuous treatments, oxygen, and medications. He will remain hospitalized indefinitely until he stabilizes enough to continue treatment at home while awaiting transplant.

When Damon does return home, life will look very different. He won’t be able to attend daycare, and many aspects of a normal childhood will be limited. On top of the heartbreak, the financial strain is overwhelming. Insurance has denied coverage for several critical medications, including one life-saving treatment costing thousands per month. Combined with PICU care, procedures, and transplant costs, the burden is unimaginable. Gina is also caring for her almost 2-year-old, unsure when or if she can return to work.

And this is where we humbly ask for your help. If you can donate — any amount — it will truly make a life-changing difference. Please share Damon’s story far and wide. Help his voice reach the world. Help us find the angels who can lift this family up. Above all, please pray. Pray specifically for complete, miraculous healing for Damon. We believe in the power of prayer, the power of community, and the power of love. Thank you for reading, sharing, praying, and giving. From our family to yours — thank you for being Damon’s angels.

Organizer and beneficiary

Cindy Christini Buettgen
Organizer
Jacksonville, FL
Gina Christini
Beneficiary
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