Changing Lives Through Cure GM1
Tax deductible
Our beloved Batul was diagnosed just eight months after birth with GM1 gangliosidosis (Type-1) —a rare, inherited disorder that severely damages nerve cells, ultimately leading to organ failure. To date, there is no cure for this heartbreaking disease. The lifespan for Type 1 usually does not exceed 3 years.
Batul is now 2 years old. She cannot move or speak, has impaired hearing and vision and depends on a gastric feeding tube (a tube in the abdomen) for nutrition. Sadly, she endures multiple seizures each day which have taken away her ability to smile and cry. She no longer responds to any stimulations and sometimes requires oxygen to breathe as well. Over the past 18 months, the disease has become increasingly aggressive, leading to frequent hospitalizations due to infection and seizures.
We turn to you today to support the Cure GM1 Foundation, an organization relentlessly working to find a cure for this devastating illness. GM1 is so rare that it receives little funding, making every contribution critical to advancing research and supporting families.
Your thoughts and prayers for Batul have always meant the world to us. Although Batul may not benefit from medical breakthroughs in time, your support gives hope that future children will not have to endure the same painful journey.
By donating, you will directly:
• Fuel innovative research focused on treatments and a cure for GM1 gangliosidosis.
• Provide essential resources and support to families facing this overwhelming diagnosis.
• Help raise awareness so that every child with GM1 has a voice.
Your prayers, love, and encouragement have carried us this far, and we are deeply grateful. Now, we humbly ask you to join us in making a lasting impact. Every donation, no matter the size, brings us one step closer to hope and healing.
Thank you for standing with Batul and with all families affected by GM1.
Organizer
Huseina Kapasi
Organizer
Albany, CA
Cure GM1 Foundation
Beneficiary