It has been 4 years now since ALS struck our family. Cory was diagnosed with ALS in early 2015, but the symptoms had already started to rear their ugly head in 2014. He is fighting with every ounce of his being. There is no cure for ALS and most people diagnosed live from 3 to 5 years. Cory is now completely wheelchair bound. He has no use of his upper extremities and very limited use of his legs. He hasn’t been able to speak in a long time as this was the very first thing affected by ALS. Thankfully, with his Tobii Dynavox, a specially-designed device that tracks his eyes, he is able to communicate his needs. Although excessive typing can be quite tiresome for him, he uses his device to stay connected to his friends and family and communicate his daily needs. While there are so many things he has lost due to ALS, he hasn’t lost his sense of humor. It sure keeps us going through the long days and nights. He still enjoys to hear from old friends and colleagues near and far.
Cory can no longer be left alone. He is unable to swallow much if anything and requires a suction machine to help clear excess saliva from his mouth. He hasn’t eaten anything by mouth in over a year and is completely dependent on his feeding tube for his nutritional needs. At night he needs his VPAP machine that provides intuitive support for his lungs. His new struggle (in addition to all of the other stuff) is fighting the loss of his neck extensor muscles. He has lost quite a bit of muscle strength in his neck, and consequently, his head has a tendency to fall. It requires constant lifting and/or support.
The financial demands of this disease are great. The drugs, medical supplies and equipment, and caregiver support alone can wipe out many families financial reserves. In addition to this Gofundme page, we also host a golf outing / auction to help raise additional funds, and we share the proceeds with the Les Turner ALS Foundation. If you would like to participate in the 4th Annual Sanderson Cup ALS Golf Outing being held June 10th at the Elgin Country Club, please check out www.sandersoncup.com. Any support you are willing to offer is greatly appreciated. Prayers, cards, messages and words of encouragement are also welcome!