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Help Colton in his Fight Against PANDAS

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Hey everyone,
My name is Leah, I'm a long time friend of Annie's. I am starting this GoFundMe in hopes of raising awareness and funds to help Annie with medical costs for her son Colton.
Annie is a single mother to two wonderful kiddos, Millie(7) and Colton(10). In 2022 Colton was diagnosed with PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections). This showed up in many different ways. He suddenly had OCD, tics, separation anxiety, regression in learning at school and more.
In October of 2023 Colton participated in a trial out of Colorado that was offering IVIG to treat his PANDAS. He was able to receive 3 rounds of treatment over that next 3 months, with his final treatment being on Christmas Eve. When the trial was over they were seeing the positive changes in Colton. He wasn't having melt downs, his hyper-activity had mellowed, his OCD seemed to disappear, his teachers were reporting how much better he seemed. His labs were ALMOST back to normal/healthy range. The treatments were working, but the trial was over. His improvements lasted about 3 months before his symptoms began to re-appear.
Unfortunately, not from a lack of trying, Annie has been denied over and over again to get these treatments approved for Colton. Without approval from insurance, these treatments run anywhere from $15,000-$35,000 PER treatment and he will need several.
On top of all of this, Colton has now been diagnosed with Autoimmune Encephalitis, epilepsy, multi-inflammatory disease, and a list of other challenges.
Colton is just a 10 year old boy that wants to live a "normal" life. He loves riding his bike, doing BMX, playing his VR and hanging with friends. All of these medical issues have been road blocks, preventing him from enjoying the little things that we all take for granted everyday.
Annie has a faith like no other. Her trust in Him has gotten her through many trials and I know she believes He will get their family through this one too. Anything you can do to help this family is so greatly appreciated and it will all go towards getting Colton back to healthy. Thank you all for caring and for the support and prayers!
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    Organizer and beneficiary

    Leah Schlotzhauer
    Organizer
    Lee's Summit, MO
    Annie Steil
    Beneficiary

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