Help Chris fight ALS!

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Help Chris fight ALS!

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If you know Chris, you love Chris. If you're not aware, he was diagnosed with ALS and has been fighting for two and a half years. He and his family are in a daily struggle against this aggressive and cruel disease. We understand that we all have our own challenges but the weight of this disease is a heavier burden than one person and his family can bear. Please donate today.

For a better understanding of what he is going through, please read this note from Chris...

"Hello all. I want to write to all of you and let you know what I have been going through the last two and a half years. I was unfortunately diagnosed with ALS. It all started with muscle twitching in my triceps. I was then cleared by the Cleveland Clinic diagnosing me with benign Fasciculation syndrome which essentially means that the twitching is benign. I was then told to get a Lyme disease test and that showed that I had some positive bands of Lyme. Therefore I started treating for the next eight months with no change in the fasciculations in my arms. Months later I started getting a wide gate in my legs and they started feeling heavy. Then my knees started to get locked up when I would feel a chill or when I would feel any kind of stress. As months went on the issue with my legs continued. I then decided to get an MRI that showed that I had a serious impingement of my C5 and C6 with stenosis on both sides, which I thought could be causing the twitching. The Cleveland clinic then brought me back in for another EMG Which showed changes from the previous one but still did not have any nerve degeneration. At the time I had mild clonus in my feet and they also believed that there was some symmetrical gray matter on both sides of my brain that they believed to be Motor neuron disease. That’s when they diagnosed me with ALS. I had five other radiologists read my MRI and they all said my brain scan was a normal scan. They believed that the Cleveland Clinic over read my results. I then decided to go to the mayo clinic in Rochester Minnesota. They did not agree with the findings of the Cleveland clinic and said that my strength was too strong to diagnose me and my test results did not reflect it. However, they did say that it sort of looked like upper and lower motor neuron disease but that we would just have to wait and see if anything happened."

(Unfortunately, Chris' condition has worsened since his summary above. He now has no motor skills and communicates via an iPad. He needs our help now.)

More from Chris about his perspective on his & his family's challenge...

"I wanted to share this because I feel like I have many friends that are not aware. I also feel like it’s my duty to share my journey and how it changed my perspective on life and strengthened my faith. You really see the world for what it is when you face great tribulation."

Please donate what you can today.

Thank you!

Organizer and beneficiary

Brian ONeill
Organizer
Chicago, IL
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