Help Chloe Live

*This Fundraiser began in 2017 & is ongoing*

[2018] Our new goal: £75K, half of the overall Stem Cell price or approximately 30 cycles of Intravenous Immunoglobulin Replacement Therapy (IVIG). — For those asking about the outcome of this, in short: unfortunately it had been put on pause due to health complications, legal prescribing issues & trouble physically getting both IVIG & SCT to Chloe for various reasons…but hope is not lost, is being gradually investigated alongside the management of crisis after crisis & Chloe’s continued complex care needs. We haven’t given up!

[05/04/2019] Chloe has begun Hormone Replacement Therapy (HRT) a treatment protocol the NHS has agreed to fund 1/3rd of.

[10/2021] We are currently out of funds so truly do appreciate anything that you can give.

Hello Everyone!
My name is Chloe Leanne. I was 19 when we started this fundraiser. I am now 24 years old and continue to fight an unwanted bundle of severe debilitating chronic conditions that began to develop after being injected with Cervarix— also known as the HPV vaccine— that we presumed to be safe and signed up for because of its “effective way in preventing cervical cancer.” That was over 11 years ago; and we couldn’t have been more wrong. In October 2016, after many years of battling with my body, my body couldn’t function anymore and I died. Due to the severity of my damaged ANS, (a system that when functioning controls our ability to do most things suchlike regulate heart rate, blood pressure and breathing automatically and effectively), I went into respiratory arrest. I was gone, wondering into another world for 9 minutes, but thankfully the universe had my back. I was yet to for-fill my purpose on earth. I was resuscitated and put on life support until my internal organs recovered and until I could breathe without a ventilator.

Someone still had a plan for me and I'm so so thankful for and very lucky to have this second chance. I make every breath count, but my life is still more than challenging... because I barely have one, which is why I am [ever so reluctantly] asking you, the public, for your help.

I am currently accepting strangers’ generous gestures of any kind to assist in relieving my family’s financial burden while we fight to relieve my feisty physical one.

Please know that anything you can offer
will be greatly appreciated.

Life Before The HPV Vaccine
Before I was ‘vaccine injured’ [a raw yet real term mocked by too many] I hiked, mountain biked, went to the park, rollerbladed to the shops, had social gatherings, went to the cinema, had birthday parties, and I had more friends than I could count on my hands.

I had an artistic, busy and athletic lifestyle. I was on the right road to getting A's at GCSE. I loved going on holidays with my family. I lived life to the max.

I Was A Dancer
I also danced 6 days a week: I loved to go to after-school sport and dance clubs every night. I really wanted to have a dance career, and now my heart bleeds with the torture knowing I may never walk again, let alone dance again.

Life After The HPV Vaccine
Life has always been important to me, but now that I'm isolated from the ‘outside world’ it means even more than ever before.

Being chronically sick has shattered my goals, plans and my dreams.

My body has been in a battle against reoccurring infections and never ending symptoms that ultimately led to the several diagnoses which i have accumulated over the years. See List below.

Despite my illness’s obvious progression I was severely neglected, gaslighted & misdiagnosed by multiple NHS doctors. The only ‘treatment’ I was given was CBT/GET (a behavioural talk & exercise based therapy now removed from guidelines) which left me wheelchair then quickly bedbound. Genuine diagnosis’s were either ignored or labelled psychosomatic.

Six years into it all a yellow card report was filed and the association between vaccine injury and chronic illness onset was on paper, documented in my notes. we thought that this would mean better care, but it infact got even worse from there on out... my local services kept dragging me down the ‘Medically Unexplained Symptoms’ (MUS) route. And even went as far as accusing my family of FII / Munchausauns by Proxy! Long story short, In 2018 I narrowly escaped forced institutionalisation but was literally left for dead until I managed to fund private doctors, had tests to reveal the damage, and made small but life sustaining improvements with the yet to be NHS approved / funded treatments.

My Medical Diagnosis' Summary

Myalgic Encephalomyelitis: M.E is classified as a neuro-immune disease in which 25% of those diagnosed (approx. 25,000 in the UK) are severely affected; get progressively ill and never recover. ME causes symptoms such as headaches, muscle pain, muscle weakness, paralysis, heavy limbs, never-ending flu like symptoms, swollen/painful joints and relentless exhaustion known as chronic fatigue.
Severe M.E. has rendered me bound to my bed, unable to walk, sometimes talk, sensitive to touch (hyperesthesia), smells (hyperosmia), light (photosensitivity), noise (hyperacusis), experiencing pulsating tinnitus, periods of insomnia or hypersomnia with no in-between… I also endure Post-Exertional Malaise - the hallmark symptom- for pushing my body with a poor energy metabolism beyond its limitations. Often something as small as sitting up in bed or cognitively engaging in a simple task (which would be considered as rest, leisure or something a healthy person wouldn’t have to think about) can be a highly stimulative activity for someone with ME and needs to be considered in the individuals ‘activity quota’; which due to lack of funding and understanding is the only thing in addition to psychological support that the NHS currently have to offer those who either aren’t candidates for or cannot afford alternative and/or experimental treatment.

Fibromyalgia: chronic pain, musculoskeletal inflammation, central sensitisation, hypersensitivity & pain trigger points. unpleasant “voodoo doll” sensations as a result of over active nerve endings.

Scheuermann's disease: (also known as juvenile osteochondrosis of the spine) is a skeletal disorder that causes irregular vertebral growth.
As a result I have dehydrated & herniated disks + mild curvature of my spine. The cause is unknown. Mine could be due to a back injury in adolescence [through dance or from a few falls I’ve had] with internal dehydration, lack of muscular stability and poor cartilage cushioning caused by other conditions being contributing factors - making it more prominent & problematic now.

  • {Diagnosis made by a private orthopaedic consultant from NHS MRI}

Dysautonomia/POTS — a condition that effects multiple functions of the ANS (heart, bladder, brain & blood vessels) as a result of autonomic dysfunction and can result in complete failure. Postural Orthostatic Tachycardia Syndrome causes me: chest pain, palpitations, inability to tolerate changes in temperature/weather, excessive sweating, dizziness, vision problems, vertigo, syncope (fainting), tachycardia (high heart rates) and low blood pressure,

  • {Diagnosis made by a private cardiology consultant}

Fowler's Syndrome: Bladder dysmotility, Interstitial Cystitis, pelvic pain & urinary retention. I insert a catheter up to 12x a day.

Gastropareisis: is a condition which causes the stomach to paralyse, and in severe cases paralysis of the entire GI tract- from the oesophagus to the anus.
Symptoms include; reflux, nausea, vomiting, malabsorption, malnutrition, weight loss, poor appetite, delayed gastric emptying, severe constipation and abdominal pains.
i have a paralysed stomach, delayed motility of my GI tract, . I’m in agony when meds, feed and water is being pushed down or pumped into my feeding tube,

Mast Cell Activation Syndrome (MCAS): Too much histamine releases in the body causing mast cells to explode (degranulate) which cause chemical reactions as a defence mechanism in which contributes to an auto-inflammatory multi-systemic response. I’m literally “allergic to life”- even my own tears! I endure severe anaphylactoid reactions which floods my lungs with secretions and results in a lot of swelling (oedema) and rashes/hives (urticaria). Nobody can cook / clean / eat or breathe in this house without thinking of the implications it would have on me first.
I have Intolerance to anything high in histamine, 100’s of IgG food & non-food allergies: Multiple Chemical Sensitivity and am now prone to paradoxical reactions to drugs.

  • {Diagnosis made by a private Immunology consultant / Allergist}

Eoinisophillic Colitis: a rare type of Inflammatory Bowel Disease (IBD) which is a biomarker of MCAS and associated with my dietary intolerances [e.g. fibre, lactose and multiple histamine releasing supplements & antibiotics.]

Non-epileptic Seizures: compromises airways and results in multiple joint dislocations. Triggered by overstimulation / noise / light / pain.
These particular seizures are possibly linked to, if not caused then exasperated by, my pituitary gland being starved of ‘survival hormone’ over the span of 5 years because my seizures have decreased significantly since HRT and reduction in prolactin levels.

Adrenal Disorder(s): undetected and untreated for half a decade!
Initially high cortisol levels (Cushing’s Syndrome) were recorded in 2017.
As of June 2018 I have been in and out of Adrenal Crisis due to untreated Addison’s-like Disease (hypocortisolism and inadequate secretions of hormones by the adrenal cortex).

  • {Private Home-to-lab test results prompted NHS tests.}

This discovery is presumed to be associated with my Severe ME rather than a separate diagnosis but we’re yet to rule out endocrine-secreting or pituitary tumours.

Hyperthyroidism/Thyroiditis- thought to be secondary to Sepsis a potentially fatal blood infection which I have fought six times.

Others include: Anaemia, Metal toxicity, Hormone deficiencies; Possible Ovarian Insufficiency, due to alarming sex hormone levels & a menstrual cycle that no longer exists.
I don't know if I'll be able to have children— many women are infertile or in irreversible ‘premature menopause’ curtesy to the content of Cervarix or ‘new and improved’ Gardasil. The fact that some have developed the cervical cancer this vaccine is said to prevent haunts me.

Query Ehlers-Danlos Syndrome (EDS): a connective tissue disorder... and much, much more that is still unknown or in the process of being diagnosed.

My Current Situation & Outlook
Today, my life is complicated and my future is uncertain. Tomorrow is another day but I never know what tomorrow or even the next hour will bring.
I have lived my life lying down in a darkened room for the past 7 years. I’m trapped in my own body and a prisoner in my own home. For < 5 years I’ve been hooked up to and 100% dependant on multiple machines & devices to keep me alive.

I had to have two tubes surgically placed in my abdomen: a Gastrostomy to free drain the overproduction of bile that my stomach accumulates while also preventing me from aspirating (vomiting into my lungs) and a Jejunostomy (which bypassed my stomach.) I use to “eat” a synthetic elemental formula via my jejunostomy, but due to a complication that left a open wound in my abdomen and requiring a stoma bag (to collect bowel content) i now have a PEGJ inserted (strictly for medications) and had to begin Total Parental Nutrition: a type of intravenous feeding.
I’m currently connected to TPN for 18 hours a day via my tunnelled central line — a veinous catheter that’s been threaded through my chest and internally rests at the superior vena cava; the tip of my heart. It provides me with all the necessary nutrients directly into my bloodstream. In addition to that, in order to meet my 24 hour quota I have another veinous catheter in my arm (a PICC line) to run 1L of IV fluids with added potassium simultaneously.

I may never be able to eat again. Unfortunately the only meds offered by the NHS which were effective for my intestinal dysmotility gave me rare and dangerous side effects i.e. A stroke-like response to metoclopramide and acute convulsions triggered by domperidone. However, my private specialist is confident that in time, with the right treatment protocol and the advancement of technology, I may regain some level of GI function in years to come. Same for bladder function and better control over my ANS. Thus, if I can fund private treatments long term I may not be this sick or reliant on the last resort interventions I’m currently on, for life.

Being symptom free is a lot to ask, but I'd do anything to have a ‘healthier sick’ life… one where I can look a little into the future and see more than just an existence.
I may have a broken body which persistently disobeys me, however I am lucky enough to be a mentally strong individual who's managed to build up her own coping mechanisms and psychological techniques despite negligence and terrible past experiences.

Despite hardship I find happiness. Despite pain I find inner peace. I have discovered the inner strength I never thought I had. I understand how much willpower, determination and endurance it takes to get through every minute of the day. I know who I am. Life has mounded and sculpted me into the wiser, stronger, more educated and more thankful woman I am today; that’s my mantra anyway! Mindfulness may help others in my situation, and yes it will keep the demons of depression and anxious thoughts away. But, no amount of mindfulness and positivity will change the immense pain I endure every day or magic the mobility and loss of sensation back into my once healthy, sporty, dancing body of mine.

This is where you can get involved :)

Whether you're anti-vax, pro-vax, pro-science or a skeptic it's not time for a heated debate; I'm severely sick & I'm pleading for your kind gesture. I'd truly love you to be a part of my journey and your help would mean the entire world to me. As much as I loath asking for money, many families that I met in the hospital (where I lived for 11 months in 2016) suggested I do so and tried to convince me; then eventually Larry Cook of finally persuaded me to do so to help with the costs of the following:

✨| Ways Your Financial Contributions Will Help |✨

General Medical Costs
For anything that will significantly make my life easier from medical appliances to reclining wheelchairs to life changing housing adaptations. My initial goal was to fund a fully reclining power chair [approx. £15,000] so I could at least go outside and be with Mother Nature— Unfortunately my body had other plans, so this is on hold.

Pain Management Costs
For example: Reiki healing a controversial alternative therapy that works for me- I believe it kept me out of ICU when I was at my very worst!!, CBD oil (now allergic to the only water soluble solution I could tolerate), Heat Pads, Various braces/splints to support and/or realign joints and limbs if advised.

Specific Medical Costs
Find + Pay for doctor(s) that specialise in conditions like mine as a result of Vaccine Adverse Reactions ✔️ Specialist recommended Tests✔️ House appointments for full health review from Harley Street Immunologist & ME specialist, The ME Trust’s Doctor & Ambassador (with combined experience of 45 years)✔️ Emergency Phone consultations.

Diagnostic, Precautionary or Investigative tests:
Genetic Testing, specific genes (i.e. MTHFR and COMP, EDS subtypes), ADEM, Myelitis, GBS, Lyme. Full panel of antibodies-for IVIG✔️ Live HPV active proteins (currently only done on autopsies.) Adrenergic & Muscarinic Receptors✔️sent to labs in Europe & USA. Private phlebotomist, special delivery courier, plus clinic and lab charges; Est. £500 per destination; approx. £1,500 in total.

Health Tracking & monitoring Services
(Tests or technology to determine disease progression/treatment success)
~Viatom CheckMe O2©️ Device: Half Price at £149 ✔️
~Glucose monitor✔️
~Home-to-Lab: Medichecks©️ Cortisol & Testosterone Blood Test- £49RRP 6-8 weeks & Ultimate Performance - £199RRP 6 monthly.
~Bioresonance/Asyra: Allergy & Intolerance. Digestive Health studies. Nutrition, vitamin, mineral, enzyme deficiency and cellular integrity profiles. I can get these via wowcher up to 88% off. Ranging between £19-£39 instead of £69-£120!

Medical intervention:
The options are... Low-dose Allergy Immunotherapy (also known as a ‘desensitisation protocol’), Hormone Replacement Therapy✔️, IV anti-virals, IVig- Intravenous immunoglobulin infusions; a type of cellular replacement (as suggested by professor+ ME, MCAS & comorbidity consultants)✔️ or Rituximab- but this is difficult to licence for those with my conditions in the UK.
The last resort but my eventual goal is to undergo potentially the most effective treatment: Stem Cell Therapy - but this is approx. £140,000. Using stem cells from umbilical cord donors to reduce the risk of rejection and to avoid the need for chemotherapy beforehand. I would also need money to cover accommodation, travel expenses etc but we will approach this bridge when it comes to it—it’s proving VERY difficult (international laws, policies & restrictions.)

If You’ve Gotten This Far — Thank You So Very Much!!

I guarantee my future won't be how I planned it, but it will be full of determination and dedication to get a better quality of life that I have dreamt of for what feels like an eternity. I have huge ambitions. I dream of traveling the world! I want to WALK again! But first I need to survive and learn to do basic things that with your help I may be able to achieve!!

"A successful person is a person that can build a firm foundation with the bricks that life has thrown at them"

My mind is there, it will just be up to funds and my body to decide how far it will be able to go in making my current dreams [of big family reunions, meet-ups with old friends or more realistically being able to have my immediate family in the same room as me without any Mast Cell attacks, Seizures or other major health implications] become a reality.

Chloe & The Brookes Family✨

Follow My Journey On Facebook

My Story On Stop Mandatory Vaccination

I also recommend watching...
‘Manufactured Crisis’ & Voices of the Shadows’ for better understanding of what we (and thousands of other families) are going through. These are available to watch on Vimeo free-of-charge.

‘Sacrificial Virgins’ on YouTube is very informative documentary about uncovering the truth of the HPV vaccine; I feature in it! It was filmed during a brief but cherished period of stability in March 2017 after a year long stay at University College London Hospital, just two months before my abnormal eye movements and ability to obtain a conversation without consequences of relapses or multiple seizures got worse. By May 2017 I lost my speech completely! I also lost a ton of weight & my luscious locks, so it barely shows the true extent of my situation, but I guess it still gets the message across.

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