Help Chloe get medical support and diagnosis'

My elder sister Chloe is only 33 and yet I've never known anyone to suffer so many medical illnesses and troubles her whole life. She receives $1300 per fortnight to cover her costs of living, medical expenses and daily costs. It simply isn't enough.

Chloe has always suffered from endometriosis for as long as I remember as well as battled tough through mental health issues, however times are only getting tougher.

Chloe has FND (functional neurological disorder) but under further investigation for potential other neurological conditions such as MS.

She has interstitial cystitis but they are unsure if thats why her bladder doesn't work but that is why she now has to have a super pubic catheter. Unfortunately NDIS funding for FND is not recognised at a permanent disability despite it affecting her daily living and mobility.

She suffers from dysphagia meaning she can't swallow certain foods otherwise she chokes.

Her legs have atrophied from being unable to walk properly and she can't step with her right foot because it doesn't connect to her brain to step so it drags which is why she loses her balance and has falls.

Chloe has lost her fine motor skills so can no longer write clearly and has tremors

She suffers chronic pain in her legs as they tire from movement but movement is the best thing.

She suffers incontinence so the urine can bypass the catheter and she wets herself so must wear continence underwear and pull ups but that is not funded by ndis so it's out of pocket to pay nurses to change the catheter and supply her own things. .

She requires an endocrinologist, pain specialist, neurologist, neurophysio, pelvic physio, she has severe endometriosis and adenomyosis so even though she underwent a full hysterectomy and oophorectomy there is still a chance endo can grow back in other deposits of her body like bowel, bladder and lungs.

She has ischemia on her brain but they are unsure why or if it is of concern but her platelets keep rising indicating neuro inflammation.

Chloe has fibroadenoma in both breasts and multiple fibroids through out both and 1 benign lump so she has to see a breast surgeon on top of everything else.

Chloe also has neuropathy which is nerve damage from her spinal fusion (which she had in April 2024).

At 33, she suffers speech delay like

Sporadic dysarthria and her face droops and her jaw and tongue seize. She takes muscle relaxants and ketamine to help in these times but they don't always work and she can loose speech for up to 5 hours. Chloe can't eat during this time as a choking hazard and drools everywhere whilst in extreme pain and is forced to use a communication board.

The medical fees are specialist fees and diagnostic tests are hardly covered under medicare and majority of her medication is not on the PBS. Ketamine alone is $350 per month, the anti depressant is $170 per month and sleeping meds are $90 per month.

Chloe needs one specialist after the next. The neurologist the other week was $750 alone and follow up is $450. The pain doctor is $350 for follow up plus weekly gp appointments and anything else that comes up.

$350 per month for private health insurance to ensure she gets treatment when needed such as infusions and getting her catheter put in which she needs botox for to help her stop wetting herself.

Chloe needs sustagen to sustain weight and is extremely skinny and vulnerable, currently relying on others to help her with food and meals.

Currently she is on a wait-list for FND rebab but the assessment alone is $900 which we are hoping really changes some aspects of her life.

She has experienced her fair share of trauma and despite this has always been such a supportive and caring person to those in need, helpful to myself and my kids and anyone in need.

Life is hard and I understand the cost of living is rising. If everyone could spare even just $5 it would make the world of difference to Chloe. I want Chloe to keep fighting and keep having a chance to live and with everyone's support and help I truly believe we can do that for her.