Help Chelsea Get Her Life Back!
Donation protected
Hopefully if you're seeing this, you know me! But most people don't know a lot of what has been going on the last 10+ years. For a long time, I have had medical issues like my lungs spontaneously collapsing, ribs dislodging and cartilage tears, blood vessel issues, etc. I won't go into to much detail about the exact things that happen, but feel free to ask if you want to learn more!
In 2016, my health quickly deteriorated and I've been unable to work more than about 5 hours per week, as per my cardiologist. My blood vessels are to stretchy due to a connective tissue disease, so my blood cant get up to my brain without treatment. I spend the majority of my time laying down flat. I have a connective tissue disease called Ehlers-Danlos Syndrome which has caused nearly every body system to have some pretty bad issues. My joints constantly dislocate daily, and they're very loose and cause lots of pain and inability to be active.
I have a central line in my chest since 2017 which I hook up to daily fluids. Luckily I can do this from home. I finally got to the point where I decided to ask for help since the doctors and treatments I need are not always covered by insurance and I cannot pursue due to the cost of them. (I've thought about asking for help, but if you know me I am extremely uneasy about it.) However, my friends have encouraged me to be okay with it and proceed with a fundraiser. So that's why you're seeing this! I have used my savings and cannot get the medical treatments/items I need to have to gain ability to do more things and feel better physically. Below, I am going to list things that my team of doctors have listed for me to pursue but that are not covered by insurance. I will likely come back on here to edit and update info very soon! But for now, this is the basic backbone of why I created this page!
I completely understand if people are unable to donate, and if you're able to share it with someone you know who can help spread the word, it would mean a lot to me! And if you're one of my praying friends, I would absolutely love prayer for healing! Even though all of this, God is GOOD.
Here is a quick list of a few of the things I am needing most urgently (towards the current goal I have set):
*Complex Care Doctor for my connective tissue disease; she specializes in EDS (Ehlers Danlos Syndrome) and other similar diagnoses. She costs $750 for the initial visit and 10$ per minute in following appointments. She should be able to offer medications or treatments that are more rare but should help increase my quality of life.
*Platelet Rich Plasma is a procedure in which they take your blood, filter out concentrated platelets and then inject them in a spot (for me it's my ribs, the most severely damaged part of my body right now and that causes severe pain) that needs a boost for healing. It is not covered by insurance and costs around 1K.
*My insurance covered almost the full cost of my wheelchair (which I use so that I can be out of the house for more than an hour at a time, because my knees cause a lot of pain with subluxation when I walk, and also blood pooling in my legs when I am upright causes my Dysautonomia to flare up and I get dizzy and sick.) However, I am on IV's daily, and I need somewhere to put the bag on my wheelchair ...but insurance won't cover the cost of an underseat carrier or attachable bag/pouches which run a few hundred dollars. Right now, I just hold my IV in my lap so it's safe...but it makes it challenging to maneuver.
*I don't even know the exact amount of all the unpaid bills, but I have quite a few, some small, some large. Also, travelling to Mayo Clinic/parking/getting to appointments actually causes me to cancel appointments if I don't have the funds at the time, so this is a big stressor for me! These four are the biggest things I am focusing on right now, though there is a list of other things that aren't quite as urgent for me, though they would greatly improve my quality of life.
Thank you so much for reading, as I know this was quite long! Believe it or not, I actually tried to write it as short as possible. :-)
If you're able to donate, it would be extremely appreciated and I would be so grateful. I am super grateful for prayers and positive vibes being sent my way!
Will update soon. Thanks everyone!
**ALSO IF YOURE ON INSTAGRAM Look me up! My account is Zebra.Warrior.Princess and yes it's because I love Xena Warrior Princess and "zebras" are sort of the mascot for EDS. This account is where I give the most health updates and explain and share tips about surgery and central lines and things like that. Thank you again, friends!
In 2016, my health quickly deteriorated and I've been unable to work more than about 5 hours per week, as per my cardiologist. My blood vessels are to stretchy due to a connective tissue disease, so my blood cant get up to my brain without treatment. I spend the majority of my time laying down flat. I have a connective tissue disease called Ehlers-Danlos Syndrome which has caused nearly every body system to have some pretty bad issues. My joints constantly dislocate daily, and they're very loose and cause lots of pain and inability to be active.
I have a central line in my chest since 2017 which I hook up to daily fluids. Luckily I can do this from home. I finally got to the point where I decided to ask for help since the doctors and treatments I need are not always covered by insurance and I cannot pursue due to the cost of them. (I've thought about asking for help, but if you know me I am extremely uneasy about it.) However, my friends have encouraged me to be okay with it and proceed with a fundraiser. So that's why you're seeing this! I have used my savings and cannot get the medical treatments/items I need to have to gain ability to do more things and feel better physically. Below, I am going to list things that my team of doctors have listed for me to pursue but that are not covered by insurance. I will likely come back on here to edit and update info very soon! But for now, this is the basic backbone of why I created this page!
I completely understand if people are unable to donate, and if you're able to share it with someone you know who can help spread the word, it would mean a lot to me! And if you're one of my praying friends, I would absolutely love prayer for healing! Even though all of this, God is GOOD.
Here is a quick list of a few of the things I am needing most urgently (towards the current goal I have set):
*Complex Care Doctor for my connective tissue disease; she specializes in EDS (Ehlers Danlos Syndrome) and other similar diagnoses. She costs $750 for the initial visit and 10$ per minute in following appointments. She should be able to offer medications or treatments that are more rare but should help increase my quality of life.
*Platelet Rich Plasma is a procedure in which they take your blood, filter out concentrated platelets and then inject them in a spot (for me it's my ribs, the most severely damaged part of my body right now and that causes severe pain) that needs a boost for healing. It is not covered by insurance and costs around 1K.
*My insurance covered almost the full cost of my wheelchair (which I use so that I can be out of the house for more than an hour at a time, because my knees cause a lot of pain with subluxation when I walk, and also blood pooling in my legs when I am upright causes my Dysautonomia to flare up and I get dizzy and sick.) However, I am on IV's daily, and I need somewhere to put the bag on my wheelchair ...but insurance won't cover the cost of an underseat carrier or attachable bag/pouches which run a few hundred dollars. Right now, I just hold my IV in my lap so it's safe...but it makes it challenging to maneuver.
*I don't even know the exact amount of all the unpaid bills, but I have quite a few, some small, some large. Also, travelling to Mayo Clinic/parking/getting to appointments actually causes me to cancel appointments if I don't have the funds at the time, so this is a big stressor for me! These four are the biggest things I am focusing on right now, though there is a list of other things that aren't quite as urgent for me, though they would greatly improve my quality of life.
Thank you so much for reading, as I know this was quite long! Believe it or not, I actually tried to write it as short as possible. :-)
If you're able to donate, it would be extremely appreciated and I would be so grateful. I am super grateful for prayers and positive vibes being sent my way!
Will update soon. Thanks everyone!
**ALSO IF YOURE ON INSTAGRAM Look me up! My account is Zebra.Warrior.Princess and yes it's because I love Xena Warrior Princess and "zebras" are sort of the mascot for EDS. This account is where I give the most health updates and explain and share tips about surgery and central lines and things like that. Thank you again, friends!
Organizer
Chelsea Bolduc
Organizer
Minneapolis, MN