Hi, my name is Carmen, many of you know me. I have asked what is wrong/happening with me, well unfortunately there isn’t a short answer to that as I am suffering from several diagnoses. In lamest terms (literally not my sarcasm), as doctors & surgeons have said, my body is failing…

While fighting with insurance companies on doctors orders, some they simply deny and send back, others they don’t cover at all.

Though I am a fighter and will continue to be one, I very humbly seek assistance from others, whether small or large, your generosity will be greatly appreciated.

Here is what we have to date:

I have a brain tumor situated next to my pituitary gland (found in November 2019), my stomach is paralyzed stage 3, gastroparesis (that’s the worst stage & creating bacteria growth from food sitting in the stomach bowl wreaking havoc throughout my body from the bacteria), my lower esophagus sphincter doesn’t open into my stomach causing frequent chocking, a very rare infection in my throat EoE, eosinophilia (have to get meds from Canada and find out later in the month if it’ll require National care), a panctate stone in my lower lobe of right kidney, blood clots in the urine, an aneurysm in my ascending aorta (discovered this past December from a complication due to a procedure), and my Thyroid is failing functioning at less than half its expectancy.

I had an NJ feeding tube placed on October 6th, it opens up into my small intestine where our bodies absorb nutrients. Doctors told me that my eating anything orally is considered “recreational eating” and to please the pallet. My stomach organ is no longer grinding up any food (which is its sole job).

So yes, my plate is very full, overflowing honestly.

I tell you I am really fighting. Every time I’m sent in for a different test/procedures I’m always told that I am way too young for this, even up to 15 years too young, yet sure enough I get confirmed diagnosis or images as results. There are some days that are so much worse than others.

Adding, I’ve had endoscopies performed monthly since November 2019, some with & without dilation of the esophagus. I have had to have the BRAVO device implanted twice for testing now.

My sincerest gratitude,

Carmen