My name is Elizabeth Ruth, our family met Emilie Jensen and her family at Cleveland Ronald McDonald house in 2010. We spent 9 months as a family. Emilie was diagnosed with RSD/CRPS in New Jersey in 2008 and after two years of treatment at home the doctors sent her for treatment at the Cleveland Clinic in 2010. Trips are every 5 weeks to have medical care, when things are good. Over the years they have been stuck away from family in NJ for months at a time. Recently in Feb of this year she went in for a "simple " procedure. A wisdom teeth extraction. The surgery caused trauma to make her RSD/ Complex Regional Pain Syndrome flare, causing her jaw to lock, face and mouth pain, swelling, and nerve damage, and difficulty with swallowing. Emilie has received many treatments and as of right now none have been successful. As of 2012 she was implanted with a intrathecal pump that helps control the RSD/CRPS in her levss. Keeping her functional. They just received word that they are cleared to try a spinal cord stimulator extended trial in the cervical area. After this is done she will need extensive therapy, longer stays . Emilie needs to see a new specialist because they suspect she has an unknown auto immune disease/condition causing resistance to medications, part of testing will be done thru Intergated medicine. .. which Insurance will NOT cover.
Emilie lives in West Orange NJ with her parents Roy and Catherine "Kitty", her sister Mariann and niece Iris, And extended family and friends that misses them so much. They are active members in Unconditional Love Christian Fellowship Church of West Orange. Em loved being an active part of their worship team and was active in helping with the children's programs. As of now she is unable to do either.
Roy and Kitty and even Emilie don't ask for help and don't share their burdens with others. They are facing huge burdens to try to get their daughter at a functioning level and possibly home not to mention just do the 5 week travel that is required for her care. Money raised will help with copays.. at $45 Each visit with an average of 5 a week that adds up. They are having to use new compuded medications an with other medications up costing $725 for them last month. This first appointment with the new Dr will be approximately $500 for the first appointment and that is not counting.testing and treatment. She will needed contined extensive physical therapy. They are blessed to stay at the Ronald McDonald House of Cleveland but even that costs $20 a night. Anything you can do will help, if you are unable to donate please share and say a prayer. You can visit Em fb page Prayers for Em. Thanks you so much.