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I never imagined my life would become this.
My days now begin and end beside a hospital bed — listening to machines, watching monitors, waiting for updates, and praying my child’s body keeps holding on through another day.
Everything changed after doctors discovered a serious medical condition that quickly became far more complex than we ever expected. Since then, our life has been filled with ICU rooms, medications, procedures, infections, setbacks, and long conversations with specialists about treatments, stability, and transplant-related care.
There are moments where my child seems calm and peaceful, and for a second I try to hold onto that feeling. But underneath it all, their body is fighting so hard every single day.
Some complications have affected breathing, energy, comfort, and the body’s ability to function normally without constant medical support. There have been periods where advanced respiratory and life-support care became necessary while doctors worked to stabilize things and give my child the best possible chance moving forward.
Right now, everything depends on careful monitoring, medications, specialized treatment, and ongoing hospital care. The focus is helping my child stay stable enough for the critical treatment and transplant-related care doctors believe may offer the best chance at recovery.
As a parent, there is nothing that prepares you for watching your child go through this.
You try to stay strong in front of them. You hold them close during painful moments. You celebrate the smallest signs of comfort and progress because those moments become everything.
This journey has also brought overwhelming emotional and financial pressure — long hospital stays, specialist care, medications, respiratory support, travel, and the many medical needs that come with critical pediatric care.
That is why this fundraiser exists.
Every donation, every share, every prayer, and every kind message helps more than words can explain. Even helping this story reach one more person truly matters to us right now.
More than anything, I just want my child to have the chance to heal, grow up, and experience the simple parts of life that every child deserves.
Thank you for taking the time to read our story and for standing beside us during the hardest chapter of our lives.
Organizer and beneficiary
Nouraldin Alkurd
Beneficiary

