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Help Brielle meet her Miracle Doctors

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My beautiful niece is a miracle baby. She wasn’t supposed to make it past birth, but she just celebrated her first birthday. Now she has an opportunity to have a surgery done to fix her special heart, but we need help getting her there! Here’s what Katie, her mom, had to say about the situation this sweet girl is in:

“Brielle has a very complex cardiac abnormality that consists of Incomplete Pentalogy of Cantrell, Ectopia Cordis, Double Outlet Right Ventricle, Pulmonary Stenosis, a VSD, and an omphalocele. Before birth, she was given a 1% chance of survival because of the rarity of the defects she has.

Brielle needs a combination of many rare and complex surgeries to fix her heart and her other abdominal defects. Currently, her heart is acting as a 1 ventricle heart. To survive, she needs her heart to work as a 2 ventricle heart, which is a surgery that is only offered at Boston Children’s Hospital (Brielle and her family currently live just south of Salt Lake City, Utah). Other surgeries she will need include: placing her heart back in her chest (though covered by skin, part of her heart is protruding out of her chest because of her abdominal wall defect), fixing her omphalocele, creating an artificial sternum, and closing up her abdominal wall defect. 

Brielle's insurance will cover all of her surgeries, but we need $7,000 to help us get to Boston for her to meet her miracle doctors. The first 2 days that we are there will consist of all sorts of tests and imaging so they will have all of the info they need to decide if they can do the surgeries and make plans for how they will. As of right now, they are 90% positive they'll be able to help Brielle.

If they do decide to do the surgeries, her first heart surgery will be on June 5th.”

Katie and her husband Montana need help covering the costs of flights, hotels, patient housing, food, and transportation for the 3 months they will be there. They will also be purchasing/renting medical supplies Brielle will need while they’re there. 

Katie will be staying in Boston with Brielle, while Montana will be flying back and forth from home so that he can be there for her surgeries, but also be able to work. 

This is going to be a big trip across country with a little one that has a lot of special needs, and they could use all the help they could get!

Thank you you so much in advance for anything you’re able to do. The last year with Brielle has been an answer to prayers for so many of us, and we’re praying for continued miracles in the future.  Any donations, big or small, make those miracles just a little more accessible. Thank you!
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Donations 

  • Amy Dunkel
    • $500 
    • 5 yrs
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Organizer and beneficiary

Rebekah King
Organizer
Phoenix, AZ
Katie Welch
Beneficiary

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