Over the past few months, our world has been flipped upside down. My husband was diagnosed with multiple hemangioblastoma tumors in his cerebellum and brainstem — and while the tumors were surgically removed, we’ve been left with more questions than answers—and a mountain of medical debt we weren’t prepared for.

Watching someone you love fight so hard just to function — while being treated like he should be back to normal — is a special kind of heartbreak. I’ve never felt more powerless over anything.

Watching the love of your life and your best friend wither away in front of you with no answers is by far the worst thing I’ve ever had to go through, and I wouldn’t wish it on my worst enemy. Not only am I watching this happen, we have an 11-year-old who is also going through this with us.

His symptoms are coming back.

We’re doing everything we can to keep pushing forward, but it’s getting harder and harder to stay afloat while he recovers without income and we wait for (hopefully) some next steps or answers.

Brian isn’t able to work right now and unfortunately, his job was in the non-profit world. He didn’t have benefits. Creating this is not something I’m comfortable with, but multiple people have suggested we make one. We are gearing up to get him into the best facilities, clinical trials, etc. — anything for him to receive the best treatment out there.