I was a cross country athlete who thought I could get to the Olympics or make a job out of my talents but my whole life I have been a bubble with illness striking me down all the time, It wasn't until 5 years ago it became a huge battle/ fight.

5 years ago I was sitting on the couch enjoying a normal day when chest pains hit me out of no where, I was screaming in pain on the floor and my blood pressure was so low none of the hospital staff knew how I was functional. Spending the next 3 years battling in an out of hospital and advocating for myself as i knew something was wrong. I was treated like I was insane, spending lots of time talking about it, passed on from one specialist to another, not being able to continue my dream as a baker. the 3rd and 4th year was when Dysautonomia, POTS, EDS, Chronic Pain, Neurocardiogenic Syncope, Multiple Sclerosis and all that fun stuff started to come out. In January 2020 and June 2020 I had stroke like episodes (not enough oxygenated blood to the brain), that caused me to lose a lot of function in my left side of my body. My blood pressure sits comfy at 65/32, my heart rates can be from 20bpm-208bpm, I pass out 4-6 times daily, my chest pains are chronic, cannot walk or function without 24hr care/supervision. 

Keep in mind I am only 23. I have lost all of my freedom, being able to drive, meeting up for brunch or even getting out of bed to play with my dog. My body has become used to all my medications and we are at the end of the road for the "Normal" treatments for these conditions, My GP (doctor) is really concerned and so is my Specialist doctors as there isn't much knowledge on what's next, Meanwhile I'm deteriorating every week, its becoming a struggle to get through everyday. I fought for 5 years to get to where I am and I'm nowhere near where i should be functionally.

I have to receive weekly infusions, Expensive medications that are not covered by the PBS (Medicare) due to being experimental, consistent specialists appointments, Physiotherapy, Exercise Physio, Occupational therapy, Hydro therapy.

I am trying to make my way to the only Dysautonomia specialist in Australia who is willing to take on my complex case, This doctor is in Queensland and requires me to be there in two weeks time and stay there for 5 weeks for SPEC CTs, Bloods, MRIs, Ultrasounds, Dietitians and Experimental treatments. I'm also trying to raise funds for my treatments and medications as it has become super expensive due to the Australian Government raising the price on medications that are not on the PBS. I also need to make my house safe for my fainting episodes, i need rails, shower seat, ramps to enter my house, walking frame and anything that will make it 100% safer then landing on my floating concrete slab house.

The funds raised will go straight to buying the needed medications, making my house safer, Doctors appointments and the tests that are needed to fully figure out what's triggering/setting my conditions off.

Thank you in advance for helping and sharing!!