Help Brantley Fight a Rare Disease and Get Life-Changing Treatment in Italy

Hi, my name is Amberlyn, and I’m the proud mom of our sweet, energetic 2-year-old son, Brantley. I never thought I’d ever have to do something like this. I’m never the one to ask for any help, but we will try anything and everything to help our son live a pain free life.

Brantley was born with an extremely rare condition called Glomuvenous malformation syndrome (GVM), a genetic vascular disorder that causes abnormal veins and painful lesions to grow throughout his body. His GVM affects his left leg, both feet, tailbone, lower spine area & genital area. Some effected areas you cannot physically see. As he grows, so does the disease, bringing pain, swelling, blood clots within the malformations, and uncertainty about what the future holds.

Watching your child hurt and knowing there are so few treatment options is heartbreaking.

After countless appointments, ER visits, testing, MRIs, and consultations, we’ve learned that there are currently very limited treatment options available in the United States for Brantley’s extensive GVM. We are now pursuing treatment with a specialist in Italy who performs a specialized procedure called Needleless Electrosclerotherapy (NEST). This treatment offers hope for reducing his pain, preserving his mobility, and improving his quality of life.

Unfortunately, this treatment is not covered by our insurance. The costs quickly add up and include:

* Medical procedures and physician fees

* International travel for Brantley and our family

* Lodging during treatment and recovery

* Follow-up care and future treatment visits

*Lost wages so we can be there to support Brantley

Every donation, no matter the amount brings Brantley one step closer to receiving the care he desperately needs.

Most doctors never see a case of what Brantley has in their whole career.

GVM’s are 1 in a million

Thank you for believing in our little boy and giving him hope for a brighter, less painful future. We will continue to share updates throughout this journey so you can follow Brantley’s progress every step of the way.

Brantley has another MRI very soon for his spinal cord and we are also going to the NYC vascular super clinic in October to meet with several vascular doctors/ specialist from all over the world.

If you are unable to donate, sharing Brantley’s story with your family, friends, church, community means just as much. Your prayers, encouragement, and support help carry us through the hardest days.

From the bottom of our hearts,

Thank you,

The Slusser Family