
Help Bill & Loretta with expenses.
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Hi, my name is Bill. My wife Loretta has been in need of a liver transplant for over 3 years. After many doctor appointments and procedures as an outpatient of Cleveland Clinic, she experienced a sudden decline in her health during December 2021. Loretta was admitted to the local hospital in Lewistown, PA on December 6, 2021. After 10 days her health kept declining and the doctors gave her a prognosis of 2 months. The doctors during this time were in contact with her liver transplant coordinator at Cleveland Clinic. On December 16, 2021 Loretta was transported to Cleveland Clinic by ambulance which is a five hour trip. Loretta continued to struggle and it was really not looking good. The liver team did her workup to activate her on the transplant list. When we began this 3 years ago her liver score was 21 on a scale from 10 to 40 with 40 being the most critical. Her score increased from 28 in October 2021 to 36 in December when it was calculated once she was in Cleveland. On December 29th at 5:30pm,we got the call that she had been activated on the list. Such an exciting answer to prayers. The next day, December 30th around 1pm, we got a call that a match was found. December 31st, Loretta received her new liver. The surgery started at 12:30pm and concluded around 10pm. I got the call from the surgeon who said she did great and the new liver was a very good liver. Wow, I have never felt so overwhelmed with the power, grace, and love of God. I had no words, I could only weep. Loretta was moved to ICU where she slept as the new year began with her transplant surgery over, with her new liver. As she began to recover it was so amazing to know that she was on her way back to a normal life. On the 1 week anniversary of her new liver she was celebrating the day by stepping down from the ICU and going to the transplant inpatient floor. On, January 6th, while enjoying her new room, it was so great to see her using her tablet, talking on the phone, and with help by physical therapy to get out of bed and sit in a chair. We had spoken to the post transplant coordinator about our meeting on January 9th to discuss discharge. On January 7th, as I was just waking up my phone rang at 6:30am. It was a nurse in ICU calling to tell me that there was an event during the night and that Loretta was critical and it didn't look good and that she was so sorry to have to tell me. I learned that Loretta suffered an air bubble that entered her brain that caused a stroke and that she also suffered some massive cardiac event. I got to the hospital quickly and found her in ICU completely still and unresponsive. I was devastated and in shock. I know over the course of the next 3 days many people offered condolences and I'm so sorry and do you need anything, but I could only cry as words would not come. Loretta's mom was finally allowed to come with me as the visiting policy only allowed for me. As we sat holding Loretta's hands and praying each day, we were heartbreaking. As we watched the brain monitor, listening to the ventilator breathing for her we had no idea how long we had with her. She was having seizures during the night but then, we were told it had been free from seizures for 48hrs and they were going to turn off the sedation to see what would happen Nothing happened...for almost 5 days, then...her eyes opened. They were jerky and unfocused. Always moving quickly left and right and staring up and to one side or the other. No sounds, no movements, nothing, just unseeing eyes. A week goes by, a left finger moved, then a few more over the next week, followed by the left toes, then the right fingers. A week later, her head moving left and right and the episodes of the jerky eye movements became less and less and she began tracking with people. They began planning for long term and placed a feeding tube through her nose and did a tracheostomy and removed the breathing tube. She began to speak. Random words and repeating things she heard. We discovered over the next few days that she was reading the tv screen and knew us. She began calling out our dog's names. On February 7th 2022 Loretta was moved to a LTAC facility. She has continued to make some improvements which are precious moments of joy that can only be credited to God's providence. She still is not able to use her legs or arms she has been moving her arms, hands, and left foot and knee. She has learned to speak a little more. She can read, smile laugh, count, and has limited memories. We do not know how long recovery will be nor do we know what her limitations will be. What was supposed to be a couple months recovery from transplant surgery quickly became a life altering, devastating event with more unknowns than answers. I have been on a leave of absence since December 2021. Gone is my income. What I had planned with the amount of time it would take and amount of savings needed to get us through suddenly fell out from underneath my feet. I have never been in a position like this nor did I ever expect to be. The expenses of living here over the past 2 months, combined with the expenses coming up from medical bills and expenses at home have me losing sleep as I try to focus on Loretta's care and recovery. All this as my leave of absence will be ending in just over a month. I know that God is in control and will hear my pleas daily. I don't presume to know how God will answer or provide, but if you are reading this, you may just be His answer.
Organizer
Bill Naylor
Organizer
Wagner, PA